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Public Support Group 296 total results
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Hello @netnan and welcome to Connect. Looking for voices of experience is what Connect is all...
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It is my understanding that you need to understand the cellular structure of the problem and...
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Hello @netnan, had left lung NET atypical carcinoid tumor. It was a little bigger - between...
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Hi @andy2020 You have really had a difficult time getting a diagnosis. I can understand how...
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Anyone have a small pancreatic IPMN cyst that turned out to be cancer?
Have CT scans every 6 months to monitor both recurrent breast cancer and neuroendocrine lung cancer. CT showed 7 mm cyst that looks like side...
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Large Appendiceal NET, well-differentiated
Does anyone have long term experience with larger appendix tumors? Especially women in relation to gynecological issues? My appendix tumor was well-differentiated and slow growing...
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First Lanreotide Injection: Any tips about diet and side effects?
Good morning, I am an 81 yr old female & was diagnosed with stage 4 NETS in my liver metastasized from my lung in Dec...
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Recurrence with Metastasis
Hi, I was dx with pancreatic nets in 2010, had a resection in my pancreas. There were some nodules left. I had octreotide for carcinoid...
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What questions should I ask oncologist tumor types and chemo treatment
77 yrs old, no symptoms, diagnosis not clear. NET found in LL lung and lymph nodes in upper LL. Dotatate G scan no involvement in...
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Where can I find a carcinoid syndrome specialist in Florida?!
Recently I had a positive 5-HIAA urine test and a 64 CU Dotatate PET scan that lit up parts of duodenum and found a 4mm...
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Possible NET with No Evidence of Tumor: Mediastinal Mass
Hello All! I have had flushing for several years with alcohol, stress, emotions, heat/exercise, and some other foods. I also have cyclical diarrhea. In the...
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NETs, Toilet Paper, a rant and a little humor
NET, the TP crisis, a rant and a little humorI’m sure the irony of the TP “shortage” is not lost on most of us. As...
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