415 total results
Comment
@jukebox42 Sorry you feel stressed. Is this a new diagnosis for you? I posted about octreotide...
Comment
Hello @gmapam and welcome to the NETs support group on Mayo Connect. As @californiazebra said, it...
Comment
Has anyone with Lung NETS suffer from pain through to back under shoulder blades? Can only...
Discussion
Straight to the liver: Anyone have NETs originating in strange areas?
I was diagnosed with NETs in 2021. My case was deemed unusual since it's only on the liver. According to my oncologist and from what...
Discussion
My journey to here...
Hi, my name is Anita. I found out I had lung NETs in March this year. I was sent for a CT scan to check...
Discussion
Too good not to share
I came across a blog this morning that was “too good as not to share”. Let me preface this with the knowledge that I was...
Discussion
How do I know somatostatin is in my system?
Good morning all. I have a question.How do I know if Somatostatin is in my system? Is it necessary for a PETSCAN Copper 64 show...
Discussion
NIH clinical study looking for the gene causing carcinoid cancer
My nephew recently became the third family member to have a NET diagnosis - his a Merkel Cell carcinoma. My father's was carcinoid of the...
Discussion
Neuroendocrine cells in Breast and Lungs DIPNECH
I was diagnosed with DIPNECH at National Jewish Health 3/23. Two months later, I had a lumpectomy on my breast. The pathology came back with...
Discussion
DIPNECH diagnosis. Has anyone had radiation?
Right middle lobectomy in Nov '24 at Mayo Scottsdale. 3 carcinoids removed were all malignant and 1 lymph node involved out of 23 taken. DIPNECH...
Discussion
What am I missing? Possible NET?
What am I missing? I have been feeling sick for 7 months, basically life has stopped. They have done many many testings on me and...
Discussion
Large Appendiceal NET, well-differentiated
Does anyone have long term experience with larger appendix tumors? Especially women in relation to gynecological issues? My appendix tumor was well-differentiated and slow growing...
Discussion
Anyone have Prophylactic Cranial Irradiation (PCI) for SCLC NETs?
I have cancer f unknown primary. Tumour in neck lymph node with histology type Neuroendocrine with suspected primary SCLC based on pathology of neck tumour.Had...