Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH
Good morning. My prayers and blessings to all on this page of interest.
This is a new journey for me. Underwent a lung biopsy due to chronic cough, shortness of breath and many long lasting episodes of bronchitis. The biopsy revealed Carcinoid Tumorletts (slow growing cancer) related to DIPNECH. I always thought my chronic cough was due to asthma, but it was not. I did research to understand the diagnosis on this very rare disease; especially in the lungs.
After the biopsy, I was prescribed Trelegy Ellipta and steroids, but these medications did not suppress symptoms. I searched for an Oncologist who studied my case for a while, discussed amongst other colleagues, and ran a series of tests. After several discussions of alternative treatment, I am to start treatment with Octreotide Injection every 28 days.
Hopefully this will suppress the cell growth and improve symptoms.
Be Blessed and Remain Safe.