Recurrence with Metastasis

Posted by suestroinski @suestroinski, Jan 21 10:34am

Hi, I was dx with pancreatic nets in 2010, had a resection in my pancreas. There were some nodules left. I had octreotide for carcinoid symptoms. I was given the all clear in January 2021. In September 2022 I went in with carcinoid symptoms again, cga and gastrin were checked and crazy high. After a CT, MRI, PET and surgical biopsy, I have been dx with spread to my stomach. There are new and growing nodules in my lungs that did not light up in the PET. I'm waiting for a treatment plan, and getting lanreotide for carcinoid symptoms. I'm feeling pretty anxious right now. Glad to have found this group, not many others understand this disease.

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

Please sign in or register to post a reply.