My nephew recently became the third family member to have a NET diagnosis – his a Merkel Cell carcinoma. My father’s was carcinoid of the ilium and sister of the lung (she is doing fine 4 years post-surgery). This has lead me to learn as much as I can about carcinoid tumors and NETs. My research turned up a clinical study at the National Institute of Health looking for the gene causing carcinoid cancer in some families. For more information about this study ago to the NIH Clinical Studies website and do a search for 08-DK-0098. They are currently recruiting participants for this study.