Neuroendocrine Tumors (NETs) Support Group

Newly diagnosed. Tumors in my liver from GI. Has anyone had surgery to remove the liver tumors? Or GI tumor? Thanks, Tara

Has anyone else been diagnosed with Neuroendocrine carcinoma cancer that has also had a liver transplant in the past? If so, I’d love to hear...

I had a Whipple procedure in March 2019 with no traces of NEC left behind. In Feb 2023 my scan confirmed recurrence in Liver, largest...

Hi,I was diagnosed with Pnet grade 2 level 4 in February. I had my first pet scan last Wednesday but haven't been able to talk...

Today, during our meeting with our NET cancer team, we were reviewing the results from CT, MRI, and PET scan, and in general we are...

HiHas anyone had stretching of the liver capsule? Slight pain in upper abdominal now and then and last scan three weeks ago was stable.Not sure...

Seems like my liver lesions(metastasis from tail of pancreas) are causing severe bouts of itching on my chest, legs, arms. Sometimes all over. Waiting for...

Hello, I was diagnosed with liver mets from ileocecal primary. I am scheduled for primary site removal next month, but the liver is still undecided....

Hello all, I wanted to start a discussion on a finding from a CT Scan I had yesterday and hope I am in the right...

hi, does anyone have swelling in the ankles in face along with their liver metastases thanks