Neuroendocrine Tumors (NETs) Support Group

Today, during our meeting with our NET cancer team, we were reviewing the results from CT, MRI, and PET scan, and in general we are...

Hi,I was diagnosed with Pnet grade 2 level 4 in February. I had my first pet scan last Wednesday but haven't been able to talk...

HiHas anyone had stretching of the liver capsule? Slight pain in upper abdominal now and then and last scan three weeks ago was stable.Not sure...

In reference to my wife: Recent C/T of abdomen and pelvis showed "increased hypervascularity in the haptic metastasis in the caudate". Initial discovery Background: NET...

Hello all, I wanted to start a discussion on a finding from a CT Scan I had yesterday and hope I am in the right...

hi, does anyone have swelling in the ankles in face along with their liver metastases thanks

Hi Everyone,Has anyone had an NET that originated in the jejunum (small intestine) that has spread to liver? If so, I am wondering how your...

I’ve included a photo of my liver Mets in case others are interested in what it actually looks like. Photo was taken by NETS surgeon...

Hi, I was just diagnosed with pancreatic NET (17mm) and was told that I should get a surgery to cut it out asap. Did a...

I've had a deep and persistent cough, often at night, which doesn't allow me to sleep, or sleep soundly. The cough initially hurt my throat...