Support Groups

Neuroendocrine Tumors (NETs) Support Group

Public Support Group
1,923 total results
Discussion
pNET with liver metastases: What is necrosis?
Hi,I was diagnosed with Pnet grade 2 level 4 in February. I had my first pet scan last Wednesday but haven't been able to talk...
Last active: May 20, 2024
Discussion
Anyone have stretching of the liver capsule?
HiHas anyone had stretching of the liver capsule? Slight pain in upper abdominal now and then and last scan three weeks ago was stable.Not sure...
Last active: Nov 19, 2023
Discussion
Liver masses found on CT Scan
Hello all, I wanted to start a discussion on a finding from a CT Scan I had yesterday and hope I am in the right...
Last active: Jan 23 7:49pm
Discussion
Anyone have swelling with liver metastases?
hi, does anyone have swelling in the ankles in face along with their liver metastases thanks
Last active: Aug 5, 2023
Discussion
What's the best way to detect liver metastases?
Hi, I was just diagnosed with pancreatic NET (17mm) and was told that I should get a surgery to cut it out asap. Did a...
Last active: Feb 5, 2023
Discussion
How to Deal with Coughing due to Liver Mets?
I've had a deep and persistent cough, often at night, which doesn't allow me to sleep, or sleep soundly. The cough initially hurt my throat...
Last active: Jun 5, 2023
Discussion
Anyone heard about Histotripsy for liver NETs?
Has anyone heard of Histotripsy? It's a technique that uses sound waves to break down tumors for liver treatment.
Last active: Feb 27, 2024
Discussion
Has anyone out there tried Histotripsy for tumors in the liver?
Has anyone out there tried Histotripsy for tumors in the liver? What were the results, where was it done, and most importantly did your insurance...
Support Group: Liver Cancer
Last active: Mar 6 11:12am
Discussion
Liver mets mistaken as hemangioma or harmatoma on MRI
Did anyone have liver mets from NET that were mistaken for hemangioma or harmatoma on MRI? How small were the liver spots found with PETCT...
Last active: Sep 25, 2022
Discussion
Lesions, Cystic liver mets, vs Tumors
Could someone please explain the difference between lesions, cystic lesions and tumors. I have gone to multiple websites to clarify my best friend's last MRI....
Last active: Mar 2, 2023