Neuroendocrine Tumors (NETs) Support Group

Hi,I was diagnosed with Pnet grade 2 level 4 in February. I had my first pet scan last Wednesday but haven't been able to talk...

HiHas anyone had stretching of the liver capsule? Slight pain in upper abdominal now and then and last scan three weeks ago was stable.Not sure...

hi, does anyone have swelling in the ankles in face along with their liver metastases thanks

Has anyone heard of Histotripsy? It's a technique that uses sound waves to break down tumors for liver treatment.

Hi, I was just diagnosed with pancreatic NET (17mm) and was told that I should get a surgery to cut it out asap. Did a...

I've had a deep and persistent cough, often at night, which doesn't allow me to sleep, or sleep soundly. The cough initially hurt my throat...

Has anyone out there tried Histotripsy for tumors in the liver? What were the results, where was it done, and most importantly did your insurance...

Looks like this is the place to ask if anyone has been thru this.My mother was diognosed in March with a 5cm low grade NET...

About one month ago I received bland embolization for NETs in my liver. The fatigue post op has been almost debilitating. I’m looking for anyone...

Did anyone have liver mets from NET that were mistaken for hemangioma or harmatoma on MRI? How small were the liver spots found with PETCT...