Support Groups

Neuroendocrine Tumors (NETs) Support Group

Public Support Group
2,116 total results
Discussion
NETs: Anyone has Liver debulking for liver metastasis?
I am interested in hearing from anyone who may have recently had liver debulking surgery due to mets to the liver? thanks. MKMN
Last active: Dec 29, 2022
Discussion
Liver and Pancreas Stable
Blessings all. I am so encouraged by the many posts and wonderful input as my wife and I are now taking a new turn with...
Last active: Jun 30 12:29pm
Discussion
Dotatate lights only in liver, but report says metastatic to liver?
Cat Scan shows 4x3 cm mass in liver and lesions in other lobe. Biopsy results neuroendocrine liver tumor. KI-67 6-8%. Synaptophysin and CK Cam positive....
Last active: Nov 4, 2024
Discussion
Anyone had liver surgery to remove liver metastasis from GI NETs?
Newly diagnosed. Tumors in my liver from GI. Has anyone had surgery to remove the liver tumors? Or GI tumor? Thanks, Tara
Last active: May 10 3:02pm
Discussion
Liver transplant and Neuroendocrine Carcinoma
Has anyone else been diagnosed with Neuroendocrine carcinoma cancer that has also had a liver transplant in the past? If so, I’d love to hear...
Last active: Jul 4 2:17pm
Discussion
Bland Liver Embolization complication
6/13/23 bland liver embolization 2 weeks later hospitalization with severe pain and spasms pain has gotten less but still debilitating CT shows hepatic infraction along...
Last active: Sep 9, 2023
Discussion
Liver Transplant to Treat NETs
Kim is about to complete her 2nd of 4 scheduled PRRT treatments, with scheduled PET scan and CAT scan to review progress before treatment #3....
Last active: Oct 25, 2023
Discussion
Newly diagnosed with NET in liver
Hello - and so grateful to find this group. I just received the diagnose earlier this week and have been trying to find info. Trying...
Last active: Dec 11, 2022
Discussion
Neuroendocrine Carcinoma with Liver Metastasis
So first of all Hi! I’m Carrie and live in Alberta Canada. Just diagnosed and started chemotherapy for my cancer that started in my bowels...
Last active: Jun 7 9:13am
Discussion
Recurrence in Liver after Whipple
I had a Whipple procedure in March 2019 with no traces of NEC left behind. In Feb 2023 my scan confirmed recurrence in Liver, largest...
Last active: Apr 15, 2023