Severe itching from liver metastasis nets

Posted by billbo @billbo, Apr 12 11:38am

Seems like my liver lesions(metastasis from tail of pancreas) are causing severe bouts of itching on my chest, legs, arms. Sometimes all over. Waiting for radioembolization to hopefully deal with it?? Cold showers and creams for now??

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

@billbo Non hot showers and cream work for me. After trying different different creams, some prescription, Cerave moisturizing lotion works the best for me. What are you using?

REPLY
Profile picture for Turkey, Volunteer Mentor @tomrennie

@billbo Non hot showers and cream work for me. After trying different different creams, some prescription, Cerave moisturizing lotion works the best for me. What are you using?

Jump to this post

@tomrennie I use Cerave with a steroid cream mixed in, chlobetasol and gabapentin prescription??

REPLY
Profile picture for billbo @billbo

@tomrennie I use Cerave with a steroid cream mixed in, chlobetasol and gabapentin prescription??

Jump to this post

@billbo I just use straight Cerave and use lots of it. I was not prescribed chlobetasol. I did take gabapentin for a while, but it was due to neuropathy. At the moment, I don't remember the name of the prescription cream. It starts with a t. I will have to go look at it in my cancer medicine cabinet. I have collected enough "stuff" over the years, that I have a small cabinet for all of it.

REPLY
Profile picture for Turkey, Volunteer Mentor @tomrennie

@billbo I just use straight Cerave and use lots of it. I was not prescribed chlobetasol. I did take gabapentin for a while, but it was due to neuropathy. At the moment, I don't remember the name of the prescription cream. It starts with a t. I will have to go look at it in my cancer medicine cabinet. I have collected enough "stuff" over the years, that I have a small cabinet for all of it.

Jump to this post

@tomrennie my liver specialist thinks the radioembolization of my liver will help deal with the itch? He sees it more of a paraneoplastic effect rather than a skin condition?? Let's hope.

REPLY
Profile picture for billbo @billbo

@tomrennie my liver specialist thinks the radioembolization of my liver will help deal with the itch? He sees it more of a paraneoplastic effect rather than a skin condition?? Let's hope.

Jump to this post

@billbo It could be. Sometimes, you just don't know when you have a lot going on internally. You do know that you just want the itching to stop.

REPLY
Profile picture for Turkey, Volunteer Mentor @tomrennie

@billbo I just use straight Cerave and use lots of it. I was not prescribed chlobetasol. I did take gabapentin for a while, but it was due to neuropathy. At the moment, I don't remember the name of the prescription cream. It starts with a t. I will have to go look at it in my cancer medicine cabinet. I have collected enough "stuff" over the years, that I have a small cabinet for all of it.

Jump to this post

@tomrennie could you check for the name of the cream that starts with a "t"? Th

REPLY
Profile picture for billbo @billbo

@tomrennie could you check for the name of the cream that starts with a "t"? Th

Jump to this post

@billbo It is triamcinolone. Please don't ask me to pronounce it. Though, I have had to try to pronounce worse.

REPLY

I have Neuroendocrine cancer and have this same symptom. It is common for Neuroendocrine cancer to produce excessive amounts of histamines as well. The rash will start and seems to move locations around my body, very itchy and frustrating. If I take a Zyrtec it provides almost immediate relief. It's an easy thing to try and if it works, it works.

REPLY

Thank you all
I have been suffering with severe itching on my scalp
It attacked me most at night during the day it’s my back
No doctor ever mentioned paraneoplastic to me
When I looked it up I have a lot of the symptoms
I am going yo see a new NET specialist next week I will definitely bring this to his attention
Thank you all again so much
Best wishes

REPLY
Profile picture for timaudette @timaudette

I have Neuroendocrine cancer and have this same symptom. It is common for Neuroendocrine cancer to produce excessive amounts of histamines as well. The rash will start and seems to move locations around my body, very itchy and frustrating. If I take a Zyrtec it provides almost immediate relief. It's an easy thing to try and if it works, it works.

Jump to this post

@timaudette thank you. I'll check it out.

REPLY
Please sign in or register to post a reply.