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Public Support Group 794 total results
Comments (721)
I was recently diagnosed with NETs in my lungs, small ones. I had the all mighty...
https://connect.mayoclinic.org/comment/1054468/
After 8 weeks of last PRRT treatment, Ga-68 DOTATATE PET/CT was done on Jan 29, 2024,...
https://connect.mayoclinic.org/comment/1007463/
One thing to ask is about the coughing and breathing exercises you must do after surgery....
https://connect.mayoclinic.org/comment/990103/
@pamelasantacruz I'm just over 5 years now since diagnosis, chemo, radiation, and two surgeries (lumpectomy for...
https://connect.mayoclinic.org/comment/968340/
Tom, that’s frustrating about your incidental findings too. I hope both conditions were successfully treated. I...
https://connect.mayoclinic.org/comment/958681/
I have some small nodules in my lungs but my NET doctor said everyone has them...
https://connect.mayoclinic.org/comment/912003/
The carcinoid heart disease caused a lot of swelling to the point it was putting pressure...
https://connect.mayoclinic.org/comment/911346/
Could it be heart related, not lungs? I'm being evaluated for Carcinoid Heart Disease due to...
https://connect.mayoclinic.org/comment/863188/
Hi @kristin3, I have over 50 typical carcinoid tumors/DIPNECH across both lungs. Because I have so...
https://connect.mayoclinic.org/comment/849316/
Hello @dak10, I so appreciate hearing from you again with some more information on your journey...
https://connect.mayoclinic.org/comment/827367/
Hi @kissoon22, welcome. This must all be so shocking and scary as you learn about your...
https://connect.mayoclinic.org/comment/790563/
Hello everyone!! I am new to the group!! Have been on my cancer journey since April...
https://connect.mayoclinic.org/comment/755415/
Hello @tatteesmom3 and welcome to Mayo Clinic Connect. I can certainly understand that you would want...
https://connect.mayoclinic.org/comment/667143/
AMD, As you like know, diffuse idiopathic pulmonary neuroendocrine cell hyperplasia (DIPNECH) is an extremely rare...
https://connect.mayoclinic.org/comment/661597/
Hi, thank you! We did meet with the NET specialist. Still wants to give my mom...
https://connect.mayoclinic.org/comment/311789/
I too have small cell cancer Mets 4 .to lungs and liver. 2017 Sept. Started out...
https://connect.mayoclinic.org/comment/232890/
Oh dear Linda. The good news is that it's not 3 months. I know, it's never...
https://connect.mayoclinic.org/comment/232770/
Teresa and @carcinoid, Dr Anthony told me the 24-hr urine test was not helpful for rectal...
https://connect.mayoclinic.org/comment/184538/
Yes it is hard to take this and understand all that is going on ,I was...
https://connect.mayoclinic.org/comment/101975/
That is interesting that you also were diagnosed with SIBO. I was on three different antibiotics...
https://connect.mayoclinic.org/comment/1279685/
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