Neuroendocrine Tumors (NETs) Support Group

My understanding was that flushing only happened with those who have GI NETS. However, I have developed something very weird in the last 8 months...

Hi, I live in part of the U.k. and had an op to remove an atypical carcinoid tumour from my inferior lobe at the end...

Way back in 2007 I was diagnosed with sarcoidosis in my lungs. At that time they mentioned a nodule of 8 mm in my left...

At the moment, I have only one lung net in my right lung. The last two days I have been having severe discomfort in my...

I’m a 78 year old female. Carcinoid tumor found in upper lymphnoids and LL lung. Also told nodule found in stomach. Not sure of difference...

My husband just died Feb 19 of neuroendocrine cancer of the lung. We had an appointment scheduled at Mayo Clinic Rochester for Feb 20, but...

I am newly diagnosed with Neuroendocrine tumor of lung. I have been monitoring a lung node in the lung since 2017 with no change, until...

@tufan and anyone else who can be helpful please My wife has been diagnosed with NET Lung and liver metastasis (stage 4) early December 2022....

I had a lobectomy 6 months ago for carcinoid tumor. After my 6 month follow up CT scan they found more nodules on other lung...

I got Diogenes last summer, neuroendocrine Tumor in Lung with metastatic liver, start directly targeting Therapie Chemo/platinum und immutherapie (atezolizumab) 5 mounts. Now results came...