Support Groups

Neuroendocrine Tumors (NETs) Support Group

Public Support Group
765 total results
Discussion
Atypical carcinoid tumour of the lung
Hi, I live in part of the U.k. and had an op to remove an atypical carcinoid tumour from my inferior lobe at the end...
Last active: Apr 7, 2024
Discussion
Flushing with NETS lung cancer?
My understanding was that flushing only happened with those who have GI NETS. However, I have developed something very weird in the last 8 months...
Last active: May 22, 2024
Discussion
Lung Nets and pain in arm pit
At the moment, I have only one lung net in my right lung. The last two days I have been having severe discomfort in my...
Last active: Jun 2, 2024
Discussion
Sarcoidosis and Lung NET, upcoming surgery
Way back in 2007 I was diagnosed with sarcoidosis in my lungs. At that time they mentioned a nodule of 8 mm in my left...
Last active: Jul 19, 2024
Discussion
Anyone with carcinoid tumors in lung and stomach?
I’m a 78 year old female. Carcinoid tumor found in upper lymphnoids and LL lung. Also told nodule found in stomach. Not sure of difference...
Last active: Apr 8, 2024
Discussion
Newly diagnosed-Primary Malignant Neuroendocrine of Lung
I am newly diagnosed with Neuroendocrine tumor of lung. I have been monitoring a lung node in the lung since 2017 with no change, until...
Last active: Oct 28, 2023
Discussion
NET lung with Liver Metastasis (stage 4)
@tufan and anyone else who can be helpful please My wife has been diagnosed with NET Lung and liver metastasis (stage 4) early December 2022....
Last active: Apr 20, 2024
Discussion
Concerns after lobectomy for carcinoid tumor in lung
I had a lobectomy 6 months ago for carcinoid tumor. After my 6 month follow up CT scan they found more nodules on other lung...
Support Group: Lung Cancer
Last active: Jan 11 9:13am
Discussion
Altitude change after lung biopsy/bronchoscopy
Does anyone have experience or know recommendations to share about a timeline for flight or altitude change after a lung biopsy? I’ve read generally that...
Last active: Jun 4, 2024
Discussion
Where are they doing neuroendocrine cancer/lung research?
My husband just died Feb 19 of neuroendocrine cancer of the lung. We had an appointment scheduled at Mayo Clinic Rochester for Feb 20, but...
Last active: Mar 17, 2023