Has anyone had the NETest performed from WREN laboratory? My Oncologist at Mayo recommended it but the research seems pretty sparse about it.
Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.
My wife submitted 4 tests to WREN labs during their initial roll out. They paid for the test. We shared this with her Mayo Oncologist. The numbers for the test varied widely and I didn't find it valuable and while her Oncologist was interested in the methodology, he didn't rely on it even as an element for her care plan. This was a couple of years ago, so things may have changed.
@megansims did you decide to get the NETest?
Here is a 2018 study that may interest you. Note that some of study authors work or worked for WREN labs.
The NETest: The Clinical Utility of Multigene Blood Analysis in the Diagnosis and Management of Neuroendocrine Tumors https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6716518/
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@colleenyoung – I did get the test done, two of them actually. The first was 60% and the second result was 67% which the lab listed as indicative of slow growing NET disease, but the Medical Director and the Mayo Oncologist also stated it was not diagnositc on its own, so then, what was the point? More anxiety, less answers!
@megansims, I can understand your frustration. Often multiple different tests are required to confirm a diagnosis. What further testing has been ordered?
I will be getting a Gallium 68 PET MRI in the Spring, along with repeat labs, basic labs as well as some NET biomarkers.
The Gallium 68 PET MRI sounds like a good plan.
Will you post again and update as to how you are feeling and the results of the new tests?
I anyone getting care or has anyone been diagnosed with a neuroendocrine tumor at Mayo and has anyone had the NET test (blood test) from WREN LABS?
Could you tell me how long ago that was??
We’ve been treated at Mayo for neuroendocrine tumor for five years. During that. My wife had three net tests from WREN while they were developing their product. The results of the net test were inconsistent. Our oncologist at Mayo thought the net test was interesting, but I don’t believe he put a great deal of faith in it.
I appreciate your sharing your thoughts/opinions, @tomewilson.
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