I have a neuroendocrine tumour in the small bowel and liver lesions

Posted by zalda @zalda, Feb 25 3:32pm

I have been waiting for surgery to remove a neuro endocrine tumour(NET) in the small bowel and lesions in the liver.

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

i just had surgery for a NET in my illeum (end of small bowel but surgeon took 6" of colon (hemicolectomy) as a precautionary. Was in hospital for 3 day. Percocet helped with any pain very well. I am home now recovering.

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after surgery, rest! and try to walk everyday prior to and after it will help tremendously. A good resourse fir me was chrisbeatcancer.com. It is priceless!

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@mimisayhi

i just had surgery for a NET in my illeum (end of small bowel but surgeon took 6" of colon (hemicolectomy) as a precautionary. Was in hospital for 3 day. Percocet helped with any pain very well. I am home now recovering.

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Thank you so much for your reply and sharing your experience.

Wishing you a fast and full recovery to good health.

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@mimisayhi

after surgery, rest! and try to walk everyday prior to and after it will help tremendously. A good resourse fir me was chrisbeatcancer.com. It is priceless!

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Good morning,

Thank you so much for the advice and link. I have been praying so much and that's what has been helping me to cope.

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I was diagnosed with multiple Net’s in the small bowel, and 16 Net’s on my liver December 2022 I’ve been on Octreotide injections monthly.. November MRI showed no growth or new tumors.. I haven’t had any surgeries and go for another MRI this April..

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@zalda, I'd like to add my welcome. I'm glad that fellow NETs members like @mimisayhi and @vinnie694 saw your post in the Cancer support group. I moved your discussion to the support group dedicated to Neuroendocrine Tumors (NETs) here https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets/

You can use the search function to find other discussions related to small bowel NETs. I think you might find these 2 to be helpful as you prepare for surgery.
- Laparoscopic Possible Open Surgery Resection - Small Bowel NETS
https://connect.mayoclinic.org/discussion/laparoscopic-possible-open-surgery-resection-small-bowel-nets/

- NETs: Scheduled for small intestine resection: What to expect?
https://connect.mayoclinic.org/discussion/newly-diagnosed-and-scheduled-for-small-intestine-resection-what-to/

Zalda, are you seeing a NETs specialist? When is your surgery?

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