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Discussions (89)
National Jewish Health Helpful Tips and my recent experience
I just returned from two weeks at NJH. IN A NUTSHELL…LOTS OF TESTS…..saw Infectious Disease Dr ..Dr Eddy….saw. Pulmonary Dr Daley…. ****saw Gastro Dr who...
Suggestions on specialty clinics currently on big 3
Can anyone suggest a specialist clinic? For my mom. Shes 79 years old. Shes active (or was) and in good health otherwise. First dx with...
My doctors have decided not to treat my MAC or Broncheostatis
Due to a pre-existing heart condition I have called Long QT Prolongation Syndrome they cannot give me the “big 3” and the extra one they...
Coughing throughout the night
I have had a chronic cough since early 2000s. At times so bad that I tore my intercostal muscles between my ribs. UCLA and Kaiser...
What is the role of an ID doctor?
I am relatively new to MAC, having been diagnosed last fall after a bronchoscopy after seeing a pulmonologist for the first time ever. I have...
Starting Arikayce - nervous
Hi All. I have been lurking here for a while and have learned a lot. I was diagnosed with slow growing MAC several months ago.....
My experience at Cedars Sinai
Hi,I went to see Dr. Wolf today because my first pulmonologist, Dr. May Lin Wilgus at UCLA Westlake CA, does not tell me much.Dr. Wolf...
Need pulmonary doc
Would like a recommendation for a great pulmonary doctor who is treating problems with patients who have mycrobacterium lentiflavin. Have a good ID doc, no...
New Bacteria Found - Gordonia Aichiensis - Has Anyone Had this?
Hello everyone, My Infectious Disease doctor ordered a second culture in December as a follow up to a positive one found in September. The latest...
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