MAC & Bronchiectasis Support Group

I have had bronchiectasis for 7 years....Also diagnosed with Mac then too...Pulmonary Doctor put me on the Big 3 right away......Took 3 times a week...

I was diagnosed with MAC in August 2022 and put on the big 3 3x per week. Initially I was okay other than gastro problems...

Have your doctors given you guidelines regarding how to manage staying safe with NTM and also have some social life? Prior to COVID, I was...

Can anyone explain to me their severity of mucus accumulation? Mine seems to go in cycles, and it goes like this . I’ll seem to...

Does anyone have any strategies for attempting to control coughing fits in public places? I am thinking most specifically about flying, or other situations when...

I just returned from two weeks at NJH. IN A NUTSHELL…LOTS OF TESTS…..saw Infectious Disease Dr ..Dr Eddy….saw. Pulmonary Dr Daley…. ****saw Gastro Dr who...

Hi All. I have been lurking here for a while and have learned a lot. I was diagnosed with slow growing MAC several months ago.....

Can anyone suggest a specialist clinic? For my mom. Shes 79 years old. Shes active (or was) and in good health otherwise. First dx with...

Due to a pre-existing heart condition I have called Long QT Prolongation Syndrome they cannot give me the “big 3” and the extra one they...

I spend much more time than I'd like managing bronchiectasis and MAC. I am taking Azithromycin and Ethambutol and will start Clofazimine tomorrow. I desperately...

Hello members, some of us are accustomed to texting, and using a lot of "shortcut" abbreviations. I even find myself doing it on Connect from...

I have had a chronic cough since early 2000s. At times so bad that I tore my intercostal muscles between my ribs. UCLA and Kaiser...

I am relatively new to MAC, having been diagnosed last fall after a bronchoscopy after seeing a pulmonologist for the first time ever. I have...

Hi,I went to see Dr. Wolf today because my first pulmonologist, Dr. May Lin Wilgus at UCLA Westlake CA, does not tell me much.Dr. Wolf...

Would like a recommendation for a great pulmonary doctor who is treating problems with patients who have mycrobacterium lentiflavin. Have a good ID doc, no...

Hello everyone, My Infectious Disease doctor ordered a second culture in December as a follow up to a positive one found in September. The latest...