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MAC & Bronchiectasis Support Group

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National Jewish Health Helpful Tips and my recent experience
I just returned from two weeks at NJH. IN A NUTSHELL…LOTS OF TESTS…..saw Infectious Disease Dr ..Dr Eddy….saw. Pulmonary Dr Daley…. ****saw Gastro Dr who...
Support Group: MAC & Bronchiectasis
Last active: Mar 8, 2024
Suggestions on specialty clinics currently on big 3
Can anyone suggest a specialist clinic? For my mom. Shes 79 years old. Shes active (or was) and in good health otherwise. First dx with...
Support Group: MAC & Bronchiectasis
Last active: Aug 7 9:27am
My doctors have decided not to treat my MAC or Broncheostatis
Due to a pre-existing heart condition I have called Long QT Prolongation Syndrome they cannot give me the “big 3” and the extra one they...
Support Group: MAC & Bronchiectasis
Last active: Mar 6 11:01am
Coughing throughout the night
I have had a chronic cough since early 2000s. At times so bad that I tore my intercostal muscles between my ribs. UCLA and Kaiser...
Support Group: MAC & Bronchiectasis
Last active: Apr 12, 2023
What is the role of an ID doctor?
I am relatively new to MAC, having been diagnosed last fall after a bronchoscopy after seeing a pulmonologist for the first time ever. I have...
Support Group: MAC & Bronchiectasis
Last active: Sep 14, 2022
Starting Arikayce - nervous
Hi All. I have been lurking here for a while and have learned a lot. I was diagnosed with slow growing MAC several months ago.....
Support Group: MAC & Bronchiectasis
Last active: Apr 15 10:36pm
My experience at Cedars Sinai
Hi,I went to see Dr. Wolf today because my first pulmonologist, Dr. May Lin Wilgus at UCLA Westlake CA, does not tell me much.Dr. Wolf...
Support Group: MAC & Bronchiectasis
Last active: Dec 5, 2023
Need pulmonary doc
Would like a recommendation for a great pulmonary doctor who is treating problems with patients who have mycrobacterium lentiflavin. Have a good ID doc, no...
Support Group: MAC & Bronchiectasis
Last active: May 14, 2023
New Bacteria Found - Gordonia Aichiensis - Has Anyone Had this?
Hello everyone, My Infectious Disease doctor ordered a second culture in December as a follow up to a positive one found in September. The latest...
Support Group: MAC & Bronchiectasis
Last active: Apr 12, 2023