MAC & Bronchiectasis Support Group

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Comments (561)

@becleartoday so great to have your feedback on these items! A few followup questions... How does...

https://connect.mayoclinic.org/comment/965899/

Discussion: Need Advice for Traveling Internationally

Support Group: MAC & Bronchiectasis

Posted: Nov 16, 2023

@sueinmn If noise is an issue you might consider getting a pair of wireless "noise reducing"...

https://connect.mayoclinic.org/comment/333002/

Discussion: Knocking on Wood

Support Group: MAC & Bronchiectasis

Posted: Feb 13, 2021

@turnbacktheclock I actually use my Pari Trek S more than I use the Pro Nebu when...

https://connect.mayoclinic.org/comment/756524/

Discussion: Anyone have any nebulizer recommendations?

Support Group: MAC & Bronchiectasis

Posted: Oct 3, 2022

See Dr. Falkinham’s response to the distilled water question in this recent thread that I started....

https://connect.mayoclinic.org/comment/1377403/

Discussion: Pari eRapid/eFlow first impressions

Support Group: MAC & Bronchiectasis

Posted: Aug 23 11:19am

PARI makes a Sinus Pulsating Aerosol System, which looks like it uses the Sprint nebulizer and...

https://connect.mayoclinic.org/comment/984379/

Discussion: How has your sinus infection been treated? Specifically.

Support Group: MAC & Bronchiectasis

Posted: Dec 21, 2023

I’m looking for a small hand held nebulizer for travelling (I have the big, noisy but...

https://connect.mayoclinic.org/comment/755439/

Discussion: Cleaning + disinfecting nebulizer and aerobica

Support Group: MAC & Bronchiectasis

Posted: Sep 30, 2022

I use an Aerobika paired with Aeroeclipse to nebulize a mix of albuterol and 7% Saline....

https://connect.mayoclinic.org/comment/814390/

Discussion: Again, which nebulizer...HELP!!

Support Group: MAC & Bronchiectasis

Posted: Feb 20, 2023

Hi @maryjo2sell I use an eFlow by Pari, it is very small and you cannot hear...

https://connect.mayoclinic.org/comment/60779/

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: Mar 28, 2017

Hi @lorifilipek and @sueinmn I've had this problem off and on with the Pari Vios Sprint....

https://connect.mayoclinic.org/comment/886407/

Discussion: Nebulizer recommendation

Support Group: MAC & Bronchiectasis

Posted: Jun 28, 2023

Sue, I see you use Symbicort inhaler now instead of Levalbuterol. Can I ask why you...

https://connect.mayoclinic.org/comment/1371763/

Discussion: Pari eRapid/eFlow first impressions

Support Group: MAC & Bronchiectasis

Posted: Aug 16 9:04am

Even when insurance won’t provide nebulizer cups and mouthpieces that can be boiled like the Pari...

https://connect.mayoclinic.org/comment/1325350/

Discussion: How to clean and sterilize nebulizer on a cruise ship?

Support Group: MAC & Bronchiectasis

Posted: Jun 12 2:53am

@sueinmn I just switched from the Pari LC Plus neb cup to the LC Sprint...Wow. Cuts...

https://connect.mayoclinic.org/comment/646910/

Discussion: What are the stages and symptoms of Bronchiectasis?

Support Group: MAC & Bronchiectasis

Posted: Oct 21, 2021

I did get a clarification from them but it was not very clear. They may not...

https://connect.mayoclinic.org/comment/813046/

Discussion: Again, which nebulizer...HELP!!

Support Group: MAC & Bronchiectasis

Posted: Feb 17, 2023

The Lamira nebulizer was developed (by Pari) specifically for use with the Arikayce to optimize delivery...

https://connect.mayoclinic.org/comment/787038/

Discussion: Again, which nebulizer...HELP!!

Support Group: MAC & Bronchiectasis

Posted: Dec 20, 2022

I had a Pari Vois compressor, after using it for about 2 month, it stopped pushing...

https://connect.mayoclinic.org/comment/1187494/

Discussion: Survey: nebulizers and compressor systems speed, etc.

Support Group: MAC & Bronchiectasis

Posted: Dec 9, 2024

Sue- In your trials did you ever use the eRapid or eFlow by Pari? If so,...

https://connect.mayoclinic.org/comment/1083839/

Discussion: Travel Nebulizer

Support Group: MAC & Bronchiectasis

Posted: Jun 9, 2024

Hi @helem I am not sure if all nebulisers are the same, mine(pari eflow) you just...

https://connect.mayoclinic.org/comment/238561/

Discussion: Help on how to use a nebulizer

Support Group: MAC & Bronchiectasis

Posted: Jan 5, 2019

I was cleaning my Pari Sprint cups in alcohol and having a lot of issues with...

https://connect.mayoclinic.org/comment/1084060/

Discussion: Travel Nebulizer

Support Group: MAC & Bronchiectasis

Posted: Jun 10, 2024

Thank you, this is very helpful! I looked up the Trek S nebulizer, it's made by...

https://connect.mayoclinic.org/comment/920721/

Discussion: To start or not to start the antibiotics?

Support Group: MAC & Bronchiectasis

Posted: Aug 29, 2023

Hi Irene, The Pari Vios works well for me. It is the first neb I've used...

https://connect.mayoclinic.org/comment/907030/

Discussion: MAC/NTM is Different for Everyone, Treatment might be different too

Support Group: MAC & Bronchiectasis

Posted: Aug 3, 2023

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