Liver Cancer Support Group

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Comments (129)

Welcome, @lori777. so kind of you to offer support to others. Your experience with intrahepatic cholangiocarcinoma...

https://connect.mayoclinic.org/comment/1016249/

Discussion: Cholangiocarcinoma Bile Duct Cancer: Want to share experiences?

Support Group: Liver Cancer

Posted: Feb 15, 2024

I pray your husband does well with the chemo. We continue to wait but hopefully things...

https://connect.mayoclinic.org/comment/1209355/

Discussion: Husband recently diagnosed with Cholangiocarcinoma and had no symptoms

Support Group: Liver Cancer

Posted: Jan 11, 2025

You can add me to the Cholangiocarcinoma discussions/forums here. I've had it for a year. I...

https://connect.mayoclinic.org/comment/788459/

Discussion: Diagnosed with cholangiocarcinoma, can this be treated?

Support Group: Liver Cancer

Posted: Dec 24, 2022

Hello. I, too, have been diagnosed with cholangiocarcinoma, intrahepatic, stage 4. I have not received any...

https://connect.mayoclinic.org/comment/886020/

Discussion: Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?

Support Group: Liver Cancer

Posted: Jun 27, 2023

@demooretucson, I hope you saw the helpful post from @berta929. I'm also tagging fellow members @tball3748...

https://connect.mayoclinic.org/comment/1110385/

Discussion: Did you have with chemo/radiation prior to distal bile duct surgery?

Support Group: Liver Cancer

Posted: Jul 23, 2024

The last bout with this beast was to do a lung resection to remove a mass...

https://connect.mayoclinic.org/comment/670110/

Discussion: Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?

Support Group: Liver Cancer

Posted: Jan 11, 2022

Never heard of ctdna test but i had AI test done a yrar ago - hubby...

https://connect.mayoclinic.org/comment/1243898/

Discussion: Pain after liver resection, only when sleeping

Support Group: Liver Cancer

Posted: Feb 23, 2025

Dear Colleen/All -- Diagnosis -- distal cholangiocarcinoma, borderline resectable. Initial treatment -- 10 infusions of gemcitabine,...

https://connect.mayoclinic.org/comment/1110435/

Discussion: Did you have with chemo/radiation prior to distal bile duct surgery?

Support Group: Liver Cancer

Posted: Jul 23, 2024

@edie78t, thanks for the additional information. As you prepare to discuss options with your oncologist, you...

https://connect.mayoclinic.org/comment/868839/

Discussion: Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?

Support Group: Liver Cancer

Posted: May 29, 2023

Dear Elizabetta -- I was diagnosed in January 2024 with distal cholangiocarcinoma. Treatments included 10 biweekly...

https://connect.mayoclinic.org/comment/1247577/

Discussion: Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?

Support Group: Liver Cancer

Posted: Feb 28, 2025

I'm a fit 69-year-old male diagnosed with distal (extrahepatic) cholangiocarcinoma in January 2024. I have completed...

https://connect.mayoclinic.org/comment/1117731/

Discussion: Cholangiocarcinoma Bile Duct Cancer: Want to share experiences?

Support Group: Liver Cancer

Posted: Aug 4, 2024

After many call we have found that it is non small cell carcinoma on the liver...

https://connect.mayoclinic.org/comment/1048737/

Discussion: Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?

Support Group: Liver Cancer

Posted: Apr 11, 2024

I was also diagnosed with hilar cholangiocarcinoma in June 2024. In 9 months I still have...

https://connect.mayoclinic.org/comment/1208351/

Discussion: Cholangiocarcinoma Bile Duct Cancer: Want to share experiences?

Support Group: Liver Cancer

Posted: Jan 10, 2025

I was diagnosed with intrahepatic cholangiocarcinoma in Dec18. Just started treatment @ Mayo in AZ last...

https://connect.mayoclinic.org/comment/160100/

Discussion: Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?

Support Group: Liver Cancer

Posted: Feb 3, 2019

I have been on chemo for 2 years with this diagnosis. The targeted therapy that was...

https://connect.mayoclinic.org/comment/919214/

Discussion: Cholangiocarcinoma Bile Duct Cancer: Want to share experiences?

Support Group: Liver Cancer

Posted: Aug 26, 2023

@wanda1014 Hello I am Jerry Drennan I am a cholangiocarcinoma patient. I was a very healthy...

https://connect.mayoclinic.org/comment/291398/

Discussion: Bile Duct Cancer Scare

Support Group: Liver Cancer

Posted: Mar 1, 2020

Hi Martin was curious if you needed chemo after liver resection - I have cholangiocarcinoma no...

https://connect.mayoclinic.org/comment/1242881/

Discussion: Pain after liver resection, only when sleeping

Support Group: Liver Cancer

Posted: Feb 22, 2025

I haven’t had any spread nor Whipple, so I can’t comment on that. I do know...

https://connect.mayoclinic.org/comment/753910/

Discussion: Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?

Support Group: Liver Cancer

Posted: Sep 26, 2022

denvergirl here - I too am interested in hearing from other people with cholangiocarcinoma. I was...

https://connect.mayoclinic.org/comment/1487352/

Discussion: Cholangiocarcinoma - Mayo Clinic Rochester. Are there other patients?

Support Group: Liver Cancer

Posted: Jan 20 12:35pm

Has anyone tried Histotripsy? My husband that has Cholangiocarcinoma since Dec 2023 will be having the...

https://connect.mayoclinic.org/comment/1149303/

Discussion: Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?

Support Group: Liver Cancer

Posted: Sep 29, 2024

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