Bile Duct Cancer Scare

Posted by wanda1014 @wanda1014, Jan 29 7:31am

My husband's doctor is in the process of ruling out bile duct cancer after a fluke discovery on some unrelated imaging that was done in December. All of his blood marker tests have come back well within normal limits but there is this lime-sized "thing" that is in his liver that is puzzling everyone. He is prone to hemangiomas and they just feel this one tumor isn't acting like a hemangioma. We were feeling rather optimistic about the marker tests being so normal, but yesterday when we went in for his biopsy, the interventional radiologist came out to talk to me, he sent me to Google to read about intrahepatic cholangiocarcinoma. He has no idea what a mistake that was to send me to Dr. Google and now I am freaking out with no medical professional to answer our questions. My husband does not smoke, drink or have any signs of any form of cirrhosis. He is not in any of the risk groups and is generally the picture of health. What are the chances this could be something else? What are the chances this is contained enough that he won't fall into these horrible statistics I'm reading about? Thanks for anything you can share with me.

Liked by jerrydrennan

Hi @wanda1014, I know such potential news can be very scary and at this stage Google can be intimidating and overwhelming. However, I'm glad to see that the internet search brought you here to Mayo Clinic Connect. I'd like to introduce you to other members who have experience with intrahepatic cholangiocarcinoma / bile duct cancer. @jerrydrennan @krishh @chicory2010 @kjrita and @afrancesca can share their stories and give you the support and assurances you need.

You may also be interested in reading these discussions, too.
– Calling all Cholangiocarcinoma/bile duct cancer Patients https://connect.mayoclinic.org/discussion/calling-all-cholangiocarcinomabile-duct-cancer-patients/
– Cholangiocarcinoma – Bile Duct Cancer – anyone else dealing with this? https://connect.mayoclinic.org/discussion/cholangiocarcinoma-bile-duct-cancer-anyone-else-dealing-with-this/

Statistics are numbers. Focus on only one number right now: your husband. I'm sure he's number one in your books. It's good that he is not a high risk candidate, markers are normal and that he is in overall good health. Whatever treatment the future may hold, that will help. Waiting is hard, but you won't have a full picture until the results of the biopsy come back and further testing is done. What are the next steps for your husband? Any appointments scheduled?

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Hi Wanda,

I am a patient(Intrahepatic Cholangiocarcinoma) at the Mayo Clinic in Phoenix. My oncologist is Mitesh Borad. I am also a trained patient and research advocate for The Cholangiocarcinoma Foundation http://www.cholangiocarcinoma.org, a national patient advocacy organization—that is the best website where patients and their families can find accurate information about ICC research and treatment options. I am sorry you both are going through this. When do you have an appointment with the oncologist to go over the results of the biopsy? If the results do show that your husband's lesion is in fact Cholangiocarcinoma, you can contact me here and I will connect you to the resources you need. –Andrea

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@wanda1014
Hello I am Jerry Drennan I am a cholangiocarcinoma patient. I was a very healthy person until I hot sick very quick. I was diagnosed in February 2017 and I went through the mayo protocol for this. I was able to have a liver transplant in September 19 2018. I was at Mayo clinic in Rochester Minnesota. If there is any question I can help with. Please let me know. I have been out of pocket due to a automobile accident. My prayers are with yall. Jerry.

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