Liver Cancer Support Group

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Comments (121)

Hi All, I have been diagnosed with both pancreatic cancer and Cholangiocarcinoma. Chemo treatment is being...

https://connect.mayoclinic.org/comment/753611/

Discussion: Diagnosed with cholangiocarcinoma, can this be treated?

Support Group: Liver Cancer

Posted: Sep 25, 2022

Thank you so much! I was 64 in June, when they told me I have hilar...

https://connect.mayoclinic.org/comment/1209216/

Discussion: Cholangiocarcinoma Bile Duct Cancer: Want to share experiences?

Support Group: Liver Cancer

Posted: Jan 11 2:47pm

Hi! I am from Europe. My mother has Cholangiocarcinoma. We were told that it is inoperable...

https://connect.mayoclinic.org/comment/885729/

Discussion: Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?

Support Group: Liver Cancer

Posted: Jun 26, 2023

I wish you all the best of luck ! My husband starts chemo on Thursday. He...

https://connect.mayoclinic.org/comment/1209230/

Discussion: Husband recently diagnosed with Cholangiocarcinoma and had no symptoms

Support Group: Liver Cancer

Posted: Jan 11 3:05pm

Colleen can you include me in your group of cholangiocarcinoma patients /caregivers? My husband was diagnosed...

https://connect.mayoclinic.org/comment/1247550/

Discussion: Cholangiocarcinoma Bile Duct Cancer: Want to share experiences?

Support Group: Liver Cancer

Posted: Feb 28 3:53pm

I actually started on July 10, so that’s more than one month. So far not bad....

https://connect.mayoclinic.org/comment/1121423/

Discussion: Anyone taking Tibsovo (ivosidenib) for bile duct cancer?

Support Group: Liver Cancer

Posted: Aug 11, 2024

My name is Joe Duffy. Just beginning my journey with Cholangiocarcinoma. I will start neoadjuvant chemo...

https://connect.mayoclinic.org/comment/1069568/

Discussion: Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?

Support Group: Liver Cancer

Posted: May 17, 2024

Thanks for your post. I had good results with Gemcitabine. I was taken off of Cisplatin...

https://connect.mayoclinic.org/comment/788077/

Discussion: Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?

Support Group: Liver Cancer

Posted: Dec 23, 2022

My name is Laura, and my children's father, & my ex of 20+ years just diagnosed...

https://connect.mayoclinic.org/comment/160071/

Discussion: Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?

Support Group: Liver Cancer

Posted: Aug 7, 2017

Anyone taking Gemcitabine IV what side effects do you get? I had to quit the capecitabine...

https://connect.mayoclinic.org/comment/1236664/

Discussion: Y-90 treatment: What helps with fatigue? Is it normal?

Support Group: Liver Cancer

Posted: Feb 14 9:58am

Hi Martin, I was diagnosed with prehilar cholangiocarcinoma in January 2023. Had liver transplant at UPMC,...

https://connect.mayoclinic.org/comment/1243513/

Discussion: Pain after liver resection, only when sleeping

Support Group: Liver Cancer

Posted: Feb 23 8:27am

Kieran-- I am sorry to hear about your dad's dx. Thank you, Colleen, for posting the...

https://connect.mayoclinic.org/comment/676299/

Discussion: Bile Duct Cancer Scare

Support Group: Liver Cancer

Posted: Jan 30, 2022

Hi Keiran86, welcome. I moved your message to this existing discussion group in the Cancer group...

https://connect.mayoclinic.org/comment/676119/

Discussion: Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?

Support Group: Liver Cancer

Posted: Jan 29, 2022

@ntrud68 , You will find several of us in the situation. Please look up the Cholangiocarcinoma...

https://connect.mayoclinic.org/comment/991129/

Discussion: Diagnosed with cholangiocarcinoma, can this be treated?

Support Group: Liver Cancer

Posted: Jan 4, 2024

My wife was diagnosed with bile duct cancer last Oct. with 3 to 6 months life...

https://connect.mayoclinic.org/comment/1009661/

Discussion: Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?

Support Group: Liver Cancer

Posted: Feb 4, 2024

Fingers crossed, @tball3748 that the MRI will show shrinkage. I think fellow cholangiocarcinoma members like @summer83...

https://connect.mayoclinic.org/comment/677724/

Discussion: What was your liver resection surgery like? (Bile Duct Cancer)

Support Group: Liver Cancer

Posted: Feb 4, 2022

Never heard of ctdna test but i had AI test done a yrar ago - hubby...

https://connect.mayoclinic.org/comment/1243898/

Discussion: Pain after liver resection, only when sleeping

Support Group: Liver Cancer

Posted: Feb 23 2:45pm

My name is John. My research showed that Mayo-Rochester is one of the top research facilities...

https://connect.mayoclinic.org/comment/788456/

Discussion: Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?

Support Group: Liver Cancer

Posted: Dec 24, 2022

I pray your husband does well with the chemo. We continue to wait but hopefully things...

https://connect.mayoclinic.org/comment/1209355/

Discussion: Husband recently diagnosed with Cholangiocarcinoma and had no symptoms

Support Group: Liver Cancer

Posted: Jan 11 6:26pm

Welcome, @lori777. so kind of you to offer support to others. Your experience with intrahepatic cholangiocarcinoma...

https://connect.mayoclinic.org/comment/1016249/

Discussion: Cholangiocarcinoma Bile Duct Cancer: Want to share experiences?

Support Group: Liver Cancer

Posted: Feb 15, 2024

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