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Discussions (88)
Does any one have HOCM & Systemic Amyloidosis?
HOCM diagnosis in May 2023. Was put on Camzyos for 6 mos. My symptoms continued to get worse: weight loss, dizziness, light headed, passing out,...
Heart Thickness
My daughter, who is now 18, has HOCM. She has an ICD and also had a myectomy last August. We knew before her surgery that...
Tele visits for parent in China with HCM?
Hi, I'm a Chinese working in the US. My mom is 70 year old and currently lives in China. In September, my mom fainted once....
Advice for apical HCM/ distolic dysfuction II/nonsustained vtach
I just spent 5 days in the hospital, heart cath, stress test and echo. My EF is preserved. No obstruction. The electrophysiologist told me my...
My septal myectomy decision, and 10 things I've learned since.
I had a septal myectomy, with related mitral valve repair, on July 24, 2025, 23 days ago. I’ll relate below how I decided on a...
When is Myectomy indicated?
I have just received my diagnosis of Obstructive HCM. I had a preop echo before spine surgery, then a cardiac MRI followed by a stress...
I'm scared
Hello, 38 yrs old here. Diagnosed 2 years ago and have gone from a 30% blockage to 70%. I didn't take my diagnosis very serious...
HCM with no options for medication for relief of symptoms
https://connect.mayoclinic.org/discussion/hcm-with-no-options-for-medication-for-relief-of-symptoms/
I have HCM (without blockage) and I am not a candidate for the new medication (Camzyoz?) and no other medications relieve my symptoms (channel/beta blockers...
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