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Hypertrophic Cardiomyopathy (HCM) Support Group

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Discussions (88)
Does any one have HOCM & Systemic Amyloidosis?
HOCM diagnosis in May 2023. Was put on Camzyos for 6 mos. My symptoms continued to get worse: weight loss, dizziness, light headed, passing out,...
Last active: Apr 12, 2024
Heart Thickness
My daughter, who is now 18, has HOCM. She has an ICD and also had a myectomy last August. We knew before her surgery that...
Last active: May 7, 2025
Tele visits for parent in China with HCM?
Hi, I'm a Chinese working in the US. My mom is 70 year old and currently lives in China. In September, my mom fainted once....
Last active: Oct 30, 2024
Advice for apical HCM/ distolic dysfuction II/nonsustained vtach
I just spent 5 days in the hospital, heart cath, stress test and echo. My EF is preserved. No obstruction. The electrophysiologist told me my...
Last active: Aug 2, 2025
My septal myectomy decision, and 10 things I've learned since.
I had a septal myectomy, with related mitral valve repair, on July 24, 2025, 23 days ago. I’ll relate below how I decided on a...
Last active: Aug 22, 2025
When is Myectomy indicated?
I have just received my diagnosis of Obstructive HCM. I had a preop echo before spine surgery, then a cardiac MRI followed by a stress...
Last active: Jun 8, 2025
I'm scared
Hello, 38 yrs old here. Diagnosed 2 years ago and have gone from a 30% blockage to 70%. I didn't take my diagnosis very serious...
Last active: Aug 10, 2023
HCM with no options for medication for relief of symptoms
I have HCM (without blockage) and I am not a candidate for the new medication (Camzyoz?) and no other medications relieve my symptoms (channel/beta blockers...
Last active: Aug 28, 2024