Hypertrophic Cardiomyopathy (HCM) Support Group

I am 65 and it has been confirmed that I have Obstructive Hypertrophic Cardiomyopathy. I’m about to start taking Camzyos. Honestly I am still digesting...

I cannot get Camzyos cause I ace the tread mill. Can run fast and uphill with no problems. But every single day walking my dog...

Since ninerafaxstat has good reports from Phase 1 and 2 clinical trials, does anyone know when and where Phase 3 will be held and how...

Hi all - I am a 74 year old female who has HOCM. Breathlessness is my only "symptom" (if I don't count the numbers -...

Has anyone had OHCM symptoms return as soon as 9 months post septal myectomy? I am 34 and after a year on camzyos had the...

I have HCOM and am on 15 mg Camzyos. I am doing remarkably well on this drug. Last week, my podiatrist gave me a cortisone...

Has anyone had mitral valve prolapse along with a nearly normal looking septum? I was at the hospital for surgery and it was cancelled after...

Hello- I was diagnosed with Obstructive HCM in May 2023. I am 58, was put on Lopressor. I had a L&R heart cath and they...

My LVEF is 70% My resting LV outflow tract gradient is 199 mmHg GLS is -14.8% This is all new to me and had the...

Hello I was wondering has anybody had trouble taking medications ? It seems like every medication I've tried it doesn't work, I had surgery 11...

Hello all, I’m trying to figure out if I have heart failure or if it’s worsening and what to do. Diagnosed at 52 with HOCM...

Hi Everyone. Posting again and looking for thoughts. I had my follow up Echo yesterday. My resting gradient is 7 and my Valsalva gradient is...

I was working outside in the Texas heat and this is the second time that I passed out at work I am on the 2.5mg...

I was dx'ed with HoCm 3 years ago. My symptoms are dynamic and change from none to major fatigue and chest tightness with radiant tightness...

I am a 71 yo female, diagnosed with HoCM in my 60s after a life threatening episode of Pericarditis. I get regular (yearly) echos, etc...

Has anyone had surgery for Apical Hypertrophic Cardiomyopathy? I am 34. I was on camzyos for a year. It didn’t work for me. Then last...

During my recent ablation for Afib, I had a TEE and they found a PFO with left to right shunt (new finding for me), I...

In May 2023 i was diagnosed with HOCM. Started metoprolol then moved to Mevacamten. I also have severe reflux with 3 hiatal hernia surgeries, the...

Hi all - I was diagnosed with HOCM about a year and a half ago. I've been on Jardiance and Verapamil and had no side...

My daughter, who is now 18, has HOCM. She has an ICD and also had a myectomy last August. We knew before her surgery that...