Hypertrophic Cardiomyopathy (HCM) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,603 total results

Comments (1,494)

How many months have you been on Camzyos?

https://connect.mayoclinic.org/comment/957089/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Oct 31, 2023

I’m happy to hear of the success with taking Camzyos I have been on 5mg for...

https://connect.mayoclinic.org/comment/1441774/

Discussion: Amazing result from taking mavacamten

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 18, 2025

I have HOCM (became obstructive at the beginning of this year (2025)), and am taking Camzyos....

https://connect.mayoclinic.org/comment/1448531/

Discussion: Left Atrial Volume and B12 Deficiency/Low Haematocrit

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 27, 2025

June, sorry for slow response to your question. Aug. 2021 (before Camzyos) : Peak LVOT gradient...

https://connect.mayoclinic.org/comment/1184660/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Dec 4, 2024

@joanallione Just reading about your concerns of stopping Camzyos. I have had "moderate" HOCM diagnosed 1988....

https://connect.mayoclinic.org/comment/1520315/

Discussion: Myqorzo: has anyone tried this new alternative to Camzyos?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 5 12:14pm

Sorry for the late response! Listen to everyone here and make the mayo your choice:) I...

https://connect.mayoclinic.org/comment/1248667/

Discussion: Myectomy Needed

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 2, 2025

I’m curious about where Camzyos will be made available internationally for patients. Also, does anyone have...

https://connect.mayoclinic.org/comment/868880/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 29, 2023

After 4 months on camzyos and doing really well; I went into afib two weeks ago....

https://connect.mayoclinic.org/comment/1045278/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Apr 4, 2024

Hello all. I just started camzyos I’m on day 11. I was wondering if anyone on...

https://connect.mayoclinic.org/comment/910225/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Aug 9, 2023

Good morning! Did you start Camzyos yet? :)

https://connect.mayoclinic.org/comment/855451/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 6, 2023

Hello all. I posted on this thread about learning that I could take Lexapro for anxiety...

https://connect.mayoclinic.org/comment/902429/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jul 26, 2023

Here's an update regarding fatigue when taking Camzyos 10mg. My doc said he could tell by...

https://connect.mayoclinic.org/comment/1572703/

Discussion: Camzyos mg increase

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 12 7:16am

Great info here. My cardio is very up to date and the doctor he consults with...

https://connect.mayoclinic.org/comment/1169565/

Discussion: Frustrated: Acing the treadmill test but chest tightness while walking

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 7, 2024

Hi, I started Camzyos program in June at a lower 2.5 dose for first month. I...

https://connect.mayoclinic.org/comment/1131518/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Aug 27, 2024

Has anyone flown on an airplane, while taking Camzyos?

https://connect.mayoclinic.org/comment/832937/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 27, 2023

Hello @andyherman3, and a BIG Welcome to Mayo Connect. Thank you for sharing your experience on...

https://connect.mayoclinic.org/comment/980296/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Dec 14, 2023

@mbharris, I don't blame you. I'd want to get it over with too. Have you had...

https://connect.mayoclinic.org/comment/1439420/

Discussion: What I Learned From My Open Heart Surgery

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 15, 2025

Are you on Medicare or traditional insurance? I am 66 and still working and get Camzyos...

https://connect.mayoclinic.org/comment/1166671/

Discussion: Cost of Camzyos on Medicare Drug Plan

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 2, 2024

If you have "obstructive" Hypertrophic Cardiomyopathy, which is what I have at my 64 years of...

https://connect.mayoclinic.org/comment/1171833/

Discussion: Hypertrophic Cardiomyopathy: Dealing with Shortness-of-breath

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 11, 2024

I have been on Camzyos 2.5mg for 18+ months. My good story is just like "Boatsforlife"...

https://connect.mayoclinic.org/comment/1024708/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Feb 29, 2024

Visiting Mayo Clinic

6930

25 minutes ago

Heart & Blood Health

10924

1 hour ago

Heart Rhythm Conditions

9039

4 hours ago

Aortic Aneurysms

3772

10 hours ago

Pacemaker & ICDs

775

10 hours ago