Hypertrophic Cardiomyopathy (HCM) Support Group

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Hi @bepeacefulall - it's great to see another fellow Canuck joining the fold! You're lucky to...

https://connect.mayoclinic.org/comment/1449773/

Discussion: Amazing result from taking mavacamten

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 29, 2025

Is anyone else on CAMZYOS? If so how does it make you feel.

https://connect.mayoclinic.org/comment/956512/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Oct 30, 2023

I am off Camzyos now, awaiting a myectomy. When I was on Camzyos, I didn’t notice...

https://connect.mayoclinic.org/comment/1329023/

Discussion: Meds & hair loss

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jun 17, 2025

I just got off the phone with UHC (plan D) to see if there were any...

https://connect.mayoclinic.org/comment/1180784/

Discussion: Cost of Camzyos on Medicare Drug Plan

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 27, 2024

Sorry for the late response! I first started seeing mayo in phoenix in Dec! I was...

https://connect.mayoclinic.org/comment/1248658/

Discussion: Septal myectomy at Mayo in Phoenix

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 2, 2025

Thank you im 77 and about to start Camzyos nervous about it.

https://connect.mayoclinic.org/comment/1218549/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jan 21, 2025

Hi Captainterry, Do you know what your gradient was when you started on Camzyos? I just...

https://connect.mayoclinic.org/comment/1178430/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 22, 2024

Agree. I have been taking Camzyos 17 months now and it is wonderfully amazing the difference...

https://connect.mayoclinic.org/comment/1441647/

Discussion: Amazing result from taking mavacamten

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 18, 2025

Hi @meryl59 and welcome. There's a great support community here, as you have already discovered. I'm...

https://connect.mayoclinic.org/comment/1009010/

Discussion: HOCM & VFib amiodarone, sotalol,camzyos

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Feb 3, 2024

Welcome to Mayo Clinic Connect @haasil. There is a lot of information here at Connect about...

https://connect.mayoclinic.org/comment/1106724/

Discussion: Does Camzyos reduce thickening of the heart or manage symptoms?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jul 16, 2024

Hi, yes for the time being I remain on same doses until my next echo with...

https://connect.mayoclinic.org/comment/1136615/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Sep 5, 2024

@cash298 I found that sometimes you do have to take the lead. I've mentioned elsewhere that...

https://connect.mayoclinic.org/comment/1459892/

Discussion: HCM getting worse?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Dec 13, 2025

@lisa4585 I don’t take anything else associated with UTI, I spoke with the HF center and...

https://connect.mayoclinic.org/comment/1469004/

Discussion: Infections while on Camzyos?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Dec 28, 2025

If you have "obstructive" Hypertrophic Cardiomyopathy, which is what I have at my 64 years of...

https://connect.mayoclinic.org/comment/1171833/

Discussion: Hypertrophic Cardiomyopathy: Dealing with Shortness-of-breath

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 11, 2024

Hello @hood, and Welcome to Mayo Connect! I see you posted this a month ago and...

https://connect.mayoclinic.org/comment/1016939/

Discussion: What numbers to expect on Echo after starting Camzyos

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Feb 16, 2024

I am a very weak old 64 years old man. Before I started Camzyos to treat...

https://connect.mayoclinic.org/comment/1185329/

Discussion: Anyone have input on living with symptoms from cardiomyopathy?

Support Group: Heart & Blood Health

Posted: Dec 6, 2024

@cash298 I was told that when Camzyos is working, it often results in an elevated BP...

https://connect.mayoclinic.org/comment/1477270/

Discussion: Has Anyone taking Camzyos Experienced Higher Blood Pressure Readings?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: 1 day ago

I would like to share my experience with you regarding Camzyos for HCOM. I am hesitant...

https://connect.mayoclinic.org/comment/1370558/

Discussion: Could it be HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Aug 14, 2025

@walkinggirl I just sent my monitor back in today, I’m terrified I’ll need an ICD, coupled...

https://connect.mayoclinic.org/comment/1458516/

Discussion: Holter Monitor / ICD

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Dec 11, 2025

Joint paint on Camzyos? Had my Camzyos increased from 5mg to 10mg just over 2 weeks...

https://connect.mayoclinic.org/comment/1008541/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Feb 2, 2024

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