Hypertrophic Cardiomyopathy (HCM) Support Group

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Comments (1,315)

Sure, den01, I just looked at my gradient results back to 2021. Remember, each case/patient is...

https://connect.mayoclinic.org/comment/1207390/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jan 9, 2025

I just wanted to report that I was very nervous about getting on CAMZYOS but I...

https://connect.mayoclinic.org/comment/1236406/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Feb 14, 2025

Over time my cardiologist noted that echocardiograms showed increased thickness and had talked about surgery for...

https://connect.mayoclinic.org/comment/1265221/

Discussion: What I Learned From My Open Heart Surgery

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 23, 2025

I had the cystoscopy. I had a lot of fluids in the hours before it because...

https://connect.mayoclinic.org/comment/1286192/

Discussion: Does Camzyos shrink/narrow your urethra?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Apr 20, 2025

Hey @starbuck41, thanks for sharing your information here. I'd like to thank you for your service...

https://connect.mayoclinic.org/comment/858138/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 11, 2023

Mine is the same 19mm I used to do alot of running and bike riding 2014-2018...

https://connect.mayoclinic.org/comment/1312054/

Discussion: Next Steps?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 24, 2025

Thank you so much for your kind response. Unfortunately I have been to 4 cardiologists from...

https://connect.mayoclinic.org/comment/1311921/

Discussion: Next Steps?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 24, 2025

In response to your original post: "Hello - I was diagnosed with Obstructive HCM in May...

https://connect.mayoclinic.org/comment/1001768/

Discussion: Newly diagnosed with HOCM

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jan 22, 2024

Hello @chris7121 , welcome to the HCM support group. I am not surprised by your comment...

https://connect.mayoclinic.org/comment/865209/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 23, 2023

In HCM (hypertrophic cardiomyopathy), trouble eating a full meal is actually not uncommon, especially in people...

https://connect.mayoclinic.org/comment/1450944/

Discussion: Trouble eating with HCM

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Dec 1, 2025

Hi @tvickery . This is a great question. I'm a 61 y.o. male and have been...

https://connect.mayoclinic.org/comment/1306530/

Discussion: Camzyos mg increase

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 17, 2025

Hi @andrewbradlyn: My wife had PFO and it sealed really well the open part of her...

https://connect.mayoclinic.org/comment/1054640/

Discussion: Afib, HOCM, and PFO

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Apr 21, 2024

I have an update on my update - it's a procedural matter regarding renewing a prescription...

https://connect.mayoclinic.org/comment/908954/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Aug 7, 2023

I am two weeks out from having a septal myectomy in Rochester. A year ago I...

https://connect.mayoclinic.org/comment/1287481/

Discussion: What surgeries are available for obstructive HOCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Apr 22, 2025

I control my high blood pressure as follows (150 mg metoprolol plus 40 mg Benicar are...

https://connect.mayoclinic.org/comment/1079528/

Discussion: Has Anyone taking Camzyos Experienced Higher Blood Pressure Readings?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jun 2, 2024

Sorry guys for the lengthy delay in updating my Camzyos journey. So here it is Weight...

https://connect.mayoclinic.org/comment/879963/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jun 16, 2023

Welcome to Mayo Connect @nurselady79, I'm glad you found this site. I'm sorry to hear Camzyos...

https://connect.mayoclinic.org/comment/1049510/

Discussion: I was dx'd 4-2023 and have worsened since.

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Apr 12, 2024

@hougoss welcome to Connect. I definitely understand your feelings at the moment as that was me...

https://connect.mayoclinic.org/comment/1357723/

Discussion: Just Diagnosed with HCOM

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jul 27, 2025

http://mayocl.in/1mtmR63 Hello @holly1275, and welcome to Mayo Connect. I'm so glad you found this group. It...

https://connect.mayoclinic.org/comment/1074362/

Discussion: Side Effects of Mavacamten (Camzyos)

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 25, 2024

@memphis901 I join @colleenyoung in welcoming you again to Mayo Clinic Connect. You have come to...

https://connect.mayoclinic.org/comment/1407045/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Oct 2, 2025

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