Hypertrophic Cardiomyopathy (HCM) Support Group

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Hi @graciechi ! I have been on Camzyos for a year now (since May 2025) and...

https://connect.mayoclinic.org/comment/1569690/

Discussion: Best time of day to take Camzyos? Best with food or on empty stomach?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 8 9:46am

(typo) That should have read Camzyos

https://connect.mayoclinic.org/comment/1349517/

Discussion: Is it safe to stop Csmzyos for 6 days?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jul 16, 2025

Your cardiologist and camzyos should be working together to find a way to make this very...

https://connect.mayoclinic.org/comment/1373074/

Discussion: Just Diagnosed with HCOM

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Aug 17, 2025

That seems like way too many drugs especially since camzyos interacts with some of them ay...

https://connect.mayoclinic.org/comment/1226754/

Discussion: HCM Fatigue and Poor Sleep - What Can I Do?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Feb 1, 2025

Did you try Camzyos? If so what happened? If not why not and why opt instead...

https://connect.mayoclinic.org/comment/1284525/

Discussion: What I Learned From My Open Heart Surgery

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Apr 18, 2025

I stopped camzyos due to intractable headaches. I am prone to headache but these were unlike...

https://connect.mayoclinic.org/comment/1110458/

Discussion: Effects after stopping Camzyos

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jul 23, 2024

Agree! Same problem. Little to no weight gain but belly much bigger! However, I too, feel...

https://connect.mayoclinic.org/comment/1581419/

Discussion: Anyone on Camzyos that has developed “belly fat “.

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: 5 days ago

Hello @lakehappy, and a warm welcome to Mayo Connect! I was a stalker on here too...

https://connect.mayoclinic.org/comment/958865/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 4, 2023

@bigheart12345 Are you taking camzyos?

https://connect.mayoclinic.org/comment/1431226/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 5, 2025

I am 79 and Medicare is paying for my Camzyos. Your doctor needs to pursue this...

https://connect.mayoclinic.org/comment/1517657/

Discussion: Just Diagnosed with HCOM

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 2 7:32am

I'm 71 years old, dislike taking medications, but have been on Camzyos since 8/2024. I also...

https://connect.mayoclinic.org/comment/1223608/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jan 28, 2025

Hello @isamac, and welcome to Mayo Connect. I'm glad you found the Camzyos group, have you...

https://connect.mayoclinic.org/comment/1131630/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Aug 27, 2024

@colleenyoung Hello. Hubby was to start Camzyos but was diagnosed now with Otolaryngeal cancer. He will...

https://connect.mayoclinic.org/comment/1400530/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Sep 24, 2025

Hello @dbrima and welcome to Mayo Clinic Connect. I am so sorry to hear of your...

https://connect.mayoclinic.org/comment/864301/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 22, 2023

I’ve been itching like mad after taking camzyos at night. Makes me crazy and I thought...

https://connect.mayoclinic.org/comment/1250238/

Discussion: Camzyos side effect of itchiness?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 4, 2025

@memphis901 Melanie, welcome to Mayo Clinic Connect. You have found a wonderful place to share your...

https://connect.mayoclinic.org/comment/1403047/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Sep 27, 2025

Has anyone had surgery since being on Camzyos? I am scheduled for foot surgery in July...

https://connect.mayoclinic.org/comment/1086124/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jun 13, 2024

Hello. I am happy to hear about the positive results with Camzyos. Was diagnosed with oHCM...

https://connect.mayoclinic.org/comment/1448250/

Discussion: Amazing result from taking mavacamten

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 27, 2025

After almost a year on Camzyos, murmur is now barely detectable. I felt better long before...

https://connect.mayoclinic.org/comment/1077972/

Discussion: Camzyos and heart murmur

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 30, 2024

www.Healthwell foundation.org they have a grant program for Camzyos.

https://connect.mayoclinic.org/comment/1228787/

Discussion: Cost of Camzyos on Medicare Drug Plan

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Feb 3, 2025

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