Hypertrophic Cardiomyopathy (HCM) Support Group

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Comments (1,315)

I am 87 years old and have been on 2.5 mg of Camzyos for 18 months...

https://connect.mayoclinic.org/comment/1442621/

Discussion: Amazing result from taking mavacamten

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 19, 2025

Why did you stop taking Camzyos?

https://connect.mayoclinic.org/comment/1142551/

Discussion: Effects after stopping Camzyos

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Sep 16, 2024

Hello @lakehappy, and a warm welcome to Mayo Connect! I was a stalker on here too...

https://connect.mayoclinic.org/comment/958865/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 4, 2023

Has anyone had surgery since being on Camzyos? I am scheduled for foot surgery in July...

https://connect.mayoclinic.org/comment/1086124/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jun 13, 2024

@memphis901 Melanie, welcome to Mayo Clinic Connect. You have found a wonderful place to share your...

https://connect.mayoclinic.org/comment/1403047/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Sep 27, 2025

Hello @kalu2512, First of all...thank you for serving your Country. It is because of brave men...

https://connect.mayoclinic.org/comment/1112678/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jul 27, 2024

@suzict Yes! omeprazole is one of the medications that is specifically warned about. As I said,...

https://connect.mayoclinic.org/comment/1218293/

Discussion: I take 5mg Camzyos in the morning.

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jan 21, 2025

Good morning-I am wondering if any of you have had any procedures done, like a colonoscopy,...

https://connect.mayoclinic.org/comment/898496/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jul 19, 2023

@mpjg love your positive energy, I wish I could get more of that. I have a...

https://connect.mayoclinic.org/comment/1471145/

Discussion: HCM getting worse?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Dec 31, 2025

I started Camzyos in August/2024. Just had a Moderna Covid booster last week. Very sore arm...

https://connect.mayoclinic.org/comment/1288695/

Discussion: Camzyos and Covid Vaccines/Boosters

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Apr 24, 2025

With camzyos my resting is 13 and with valsalva its 38 So camzyos has allowed me...

https://connect.mayoclinic.org/comment/1270304/

Discussion: Myectomy Needed

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 30, 2025

The cost of the medicine (CAMZYOS) can be covered by insurance, if not, then search some...

https://connect.mayoclinic.org/comment/1115928/

Discussion: Left ventricle leather

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Aug 1, 2024

Hi,My name Mark one year on Camzyos

https://connect.mayoclinic.org/comment/1100996/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jul 7, 2024

I have improved greatly on 10 mg of Camzyos. I am labeled "severe" HCOM. My doctor...

https://connect.mayoclinic.org/comment/1059428/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Apr 29, 2024

I am about to have the septal myectomy in 3 days. I, too, am worried about...

https://connect.mayoclinic.org/comment/900186/

Discussion: Has anyone stopped taking camzyos? I have stopped and feel very sick.

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jul 22, 2023

Hi mspope...I really appreciate your comment and I would like to know what med your cardiologist...

https://connect.mayoclinic.org/comment/1078994/

Discussion: Has Anyone taking Camzyos Experienced Higher Blood Pressure Readings?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jun 1, 2024

www.Healthwell foundation.org they have a grant program for Camzyos.

https://connect.mayoclinic.org/comment/1228787/

Discussion: Cost of Camzyos on Medicare Drug Plan

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Feb 3, 2025

I will be starting camzyos next Wednesday or Thursday. David

https://connect.mayoclinic.org/comment/957435/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 1, 2023

How many months have you been on Camzyos?

https://connect.mayoclinic.org/comment/957089/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Oct 31, 2023

Hello there @yayee, and welcome to Mayo Connect. I'm glad you found the Hypertrophic group. Have...

https://connect.mayoclinic.org/comment/1068868/

Discussion: Is Camzyos effective long term?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 16, 2024

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