Hypertrophic Cardiomyopathy (HCM) Support Group

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Hi @judymw, and a warm Mayo Clinic Connect welcome! I'm glad you found this site and...

https://connect.mayoclinic.org/comment/1209030/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jan 11, 2025

Here’s a simplified overview of CAMZYOS's mechanism in reducing septal thickness: Camzyos belongs to a class...

https://connect.mayoclinic.org/comment/1171405/

Discussion: How long before benefits of Camzyos were realized?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 10, 2024

Hi @don69, and a warm welcome to Mayo Clinic Connect! https://connect.mayoclinic.org/discussion/camzyos-mavacamten-prescription/ I do not know if...

https://connect.mayoclinic.org/comment/1109455/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jul 21, 2024

Welcome to Mayo Clinic Connect @muddymudskipper, @boatsforlife is a wonderful resource for you to check out....

https://connect.mayoclinic.org/comment/1589881/

Discussion: Camzyos thoughts? Good or bad

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: 1 day ago

A septal myectomy is open heart surgery. Until Camzyos was available it was the best treatment...

https://connect.mayoclinic.org/comment/1178261/

Discussion: Has anyone had minimally invasive Septal Myectomy?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 22, 2024

Hi I’m on Camzyos 6 months now I have had a hard lump on my lip...

https://connect.mayoclinic.org/comment/1373535/

Discussion: Side Effects of Mavacamten (Camzyos)

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Aug 18, 2025

Hello hopenr, I have been on Camzyos for a year or so. Have had no significant...

https://connect.mayoclinic.org/comment/1586158/

Discussion: Camzyos- Pros & Cons

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: 6 days ago

Hello @mrsblueskies There are several members here on Connect from Canada and Europe who are Camzyos....

https://connect.mayoclinic.org/comment/1519336/

Discussion: How available is Camzyos outside the US?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 4 9:56am

Hello @elepez Welcome to Mayo Clinic Connect. You've come to the right place to find out...

https://connect.mayoclinic.org/comment/1374160/

Discussion: Side Effects of Mavacamten (Camzyos)

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Aug 19, 2025

Hello Danny, @dconner, and welcome to Mayo Clinic Connect. This is a great place to come...

https://connect.mayoclinic.org/comment/1564746/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 2 9:58am

Hi! Regarding where to get your follow up echos- your local cardiologist can do it after...

https://connect.mayoclinic.org/comment/1385013/

Discussion: Camzyos treatment location / expertise?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Sep 2, 2025

Make sure to talk to you camzyos pharmacist before taking any supplement's or new medicine! I...

https://connect.mayoclinic.org/comment/1254830/

Discussion: Camzyos side effect of itchiness?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 10, 2025

My experience is very similar to yours. I am on 15 mg of Camzyos and doing...

https://connect.mayoclinic.org/comment/1097710/

Discussion: Anyone been on camzyos for approx a year?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jul 2, 2024

This site is full of information, have you had a chance to look around in the...

https://connect.mayoclinic.org/comment/918113/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Aug 24, 2023

@cornish I'm also a 78 yr old female. Was diagnosed with OHC in Sept of last...

https://connect.mayoclinic.org/comment/1537890/

Discussion: New HCM diagnosis. Worst symptom is mucus buildup. Is this normal?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 29 10:29am

Thank you so much for your post! I wasn't as active as you are but enjoyed...

https://connect.mayoclinic.org/comment/1581096/

Discussion: How to decide whether to take Camzyos or have surgery?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 23 7:46am

Your cardiologist and camzyos should be working together to find a way to make this very...

https://connect.mayoclinic.org/comment/1373074/

Discussion: Just Diagnosed with HCOM

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Aug 17, 2025

That seems like way too many drugs especially since camzyos interacts with some of them ay...

https://connect.mayoclinic.org/comment/1226754/

Discussion: HCM Fatigue and Poor Sleep - What Can I Do?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Feb 1, 2025

Hi @graciechi ! I have been on Camzyos for a year now (since May 2025) and...

https://connect.mayoclinic.org/comment/1569690/

Discussion: Best time of day to take Camzyos? Best with food or on empty stomach?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 8 9:46am

(typo) That should have read Camzyos

https://connect.mayoclinic.org/comment/1349517/

Discussion: Is it safe to stop Csmzyos for 6 days?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jul 16, 2025

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