Hypertrophic Cardiomyopathy (HCM) Support Group

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Thats awesome! I have plenty of friends in their 70’s that are very active and fit!...

https://connect.mayoclinic.org/comment/1248942/

Discussion: Myectomy Needed

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 2, 2025

Hello @tojk, and welcome to Mayo Clinic Connect. I'm glad you found this online support group...

https://connect.mayoclinic.org/comment/1216332/

Discussion: Side Effects of Mavacamten (Camzyos)

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jan 19, 2025

I would ask your cardiologist who can give you the most accurate answer. I found online...

https://connect.mayoclinic.org/comment/1169437/

Discussion: Is Camzyos used for nonobstructive HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 7, 2024

I have Hypertrophic obstructive cardiomyopathy (HOCM) and as soon as I started the capsule Camzyos 5...

https://connect.mayoclinic.org/comment/1180989/

Discussion: Hypertrophic Cardiomyopathy: Dealing with Shortness-of-breath

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 27, 2024

Yes, that is what I am looking for, certified Camzyos Cardiologist. Thank you. I did look...

https://connect.mayoclinic.org/comment/1178793/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 23, 2024

I know if you are on Camzyos you should get an ok from the pharmacy first....

https://connect.mayoclinic.org/comment/1038351/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 22, 2024

I am planning to try Camzyos. I didn't feel at all different before, during, or after...

https://connect.mayoclinic.org/comment/957433/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 1, 2023

Thank you for your quick reply. Much appreciated. Wishing you a good recovery! I’m guessing Camzyos...

https://connect.mayoclinic.org/comment/960494/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 7, 2023

@mmicahk thank you! The other question is if Kaiser covers Camzyos cost? Is Dr. Ann Sheridan...

https://connect.mayoclinic.org/comment/1437110/

Discussion: Septal Myectomy Consideration

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 12, 2025

I have been taking Camzyos 5 mg for the last 16 months and my murmur now...

https://connect.mayoclinic.org/comment/1359713/

Discussion: Camzyos and heart murmur

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jul 30, 2025

It has been a very frustrating period for sure Im now 4 weeks into camzyos and...

https://connect.mayoclinic.org/comment/1211235/

Discussion: Why Camzyos instead of surgery?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jan 14, 2025

I'm in Vancouver and have been on Camzyos for a long time. I can completely understand...

https://connect.mayoclinic.org/comment/1524732/

Discussion: How available is Camzyos outside the US?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 11 1:56pm

We are doing more extended traveling now that I am doing so much better. We’re looking...

https://connect.mayoclinic.org/comment/1519350/

Discussion: How available is Camzyos outside the US?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 4 10:19am

@walkinggirl Thanks for sharing. I had started a conversation with the Association but never got fully...

https://connect.mayoclinic.org/comment/1587694/

Discussion: How to decide whether to take Camzyos or have surgery?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: 1 day ago

@boatsforlife Yes! Another Canadian here on Camzyos. This med makes a phenomenonal difference for me. I...

https://connect.mayoclinic.org/comment/1450784/

Discussion: Amazing result from taking mavacamten

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Dec 1, 2025

Hi - it must be karukgirl because I have not been on Camzyos or had open...

https://connect.mayoclinic.org/comment/1203724/

Discussion: Why Camzyos instead of surgery?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jan 4, 2025

Agree me too. However, now on my 4th month in Camzyos my energy is getting back...

https://connect.mayoclinic.org/comment/1089710/

Discussion: feeling tired?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jun 19, 2024

I have been on Camzyos for 6 months. Currently on 5mg. I’ve never had insomnia problems...

https://connect.mayoclinic.org/comment/940808/

Discussion: Camzyos and insomnia.

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Oct 2, 2023

My exact symptoms, dizzy spin, I hope it’s just a 1 time thing, how long have...

https://connect.mayoclinic.org/comment/862861/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 19, 2023

no surgery. Camzyos doing the trick right now. can’t say I have no side effects but...

https://connect.mayoclinic.org/comment/1230540/

Discussion: Side Effects of Mavacamten (Camzyos)

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Feb 6, 2025

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