Hypertrophic Cardiomyopathy (HCM) Support Group

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I started with Camzyos - 5mg from October-07-2024. It has given me little relief and can...

https://connect.mayoclinic.org/comment/1282874/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Apr 15, 2025

Sorry to hear that you had all that trouble. Glad you are feeling better My Cardiologist...

https://connect.mayoclinic.org/comment/1073774/

Discussion: Side Effects of Mavacamten (Camzyos)

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 24, 2024

My advice is to wait and see. The same thing happened to me. I am 71...

https://connect.mayoclinic.org/comment/1288161/

Discussion: Cardiologist just lowered my Camzyos dose from 5mg to 2.5mg but....

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Apr 23, 2025

I know you have commented on a few of my post and I just wanted to...

https://connect.mayoclinic.org/comment/1285323/

Discussion: What I Learned From My Open Heart Surgery

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Apr 19, 2025

Thank you! Your answer helps a lot - I think I will be on Camzyos within...

https://connect.mayoclinic.org/comment/1191652/

Discussion: New Diagnosis Of HCM

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Dec 16, 2024

Hello all, my name is Joy. I'm so glad I found this group. When I started...

https://connect.mayoclinic.org/comment/897910/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jul 18, 2023

It sounds like you have a very full life in your current condition, so I understand...

https://connect.mayoclinic.org/comment/1079753/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jun 2, 2024

You have been on Mavacamten/Camzyos for one week? I didn't see any results for almost two...

https://connect.mayoclinic.org/comment/960249/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 6, 2023

Yes I do, I am on Camzyos 5mg (for 28 days now) and also Metoprolol succinate...

https://connect.mayoclinic.org/comment/1057080/

Discussion: HCM Fatigue and Poor Sleep - What Can I Do?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Apr 25, 2024

It was quickly explained to me that the first month was over $7000 but my part...

https://connect.mayoclinic.org/comment/926361/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Sep 8, 2023

Hi I also live in Tx I'm starting camzyos. Can I ask who your HOCM specialist...

https://connect.mayoclinic.org/comment/948340/

Discussion: Has anyone else passed out at work

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Oct 15, 2023

thank you so much for your reply. So you are still on 12.5 of Metropol and...

https://connect.mayoclinic.org/comment/1136584/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Sep 5, 2024

I am 51, diagnosed with obstructive HCM first of this year. Been on Camzyos for 6...

https://connect.mayoclinic.org/comment/940801/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Oct 2, 2023

Hi, I actually recently had a myectomy at Mayo Clinic and was told to stop Camzyos...

https://connect.mayoclinic.org/comment/893608/

Discussion: Has anyone stopped taking camzyos? I have stopped and feel very sick.

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jul 10, 2023

HCM. FROM AN EET procedure, my heart Dr determined the hardness of part of my heart...

https://connect.mayoclinic.org/comment/902050/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jul 25, 2023

Sorry that happened but your doc didn’t order PYP scan to rule out Amyloidosis first? Can’t...

https://connect.mayoclinic.org/comment/1258561/

Discussion: Side Effects of Mavacamten (Camzyos)

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 15, 2025

Good questions for your pharmacist and cardiologist I have yet been able to find information on...

https://connect.mayoclinic.org/comment/1256281/

Discussion: Zoloft and Camzyos?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 12, 2025

I’m thinking of changing my beta blocker to nighttime also - currently take in am. I’ll...

https://connect.mayoclinic.org/comment/1216902/

Discussion: I take 5mg Camzyos in the morning.

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jan 19, 2025

Yes, I am on Camzyos for obstructive hypertrophic cardiomyopathy. That’s where the heart becomes enlarged and...

https://connect.mayoclinic.org/comment/1361934/

Discussion: Just Diagnosed with HCOM

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Aug 2, 2025

Thats awesome! I have plenty of friends in their 70’s that are very active and fit!...

https://connect.mayoclinic.org/comment/1248942/

Discussion: Myectomy Needed

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 2, 2025

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