Hypertrophic Cardiomyopathy (HCM) Support Group

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I am using camzyos and as of now I do not need any surgery. Qualifications to...

https://connect.mayoclinic.org/comment/1199115/

Discussion: Anyone have input on living with symptoms from cardiomyopathy?

Support Group: Heart & Blood Health

Posted: Dec 28, 2024

Have you tried switching your Camzyos dosage to the evening? I have and it has helped...

https://connect.mayoclinic.org/comment/1223841/

Discussion: HCM Fatigue and Poor Sleep - What Can I Do?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jan 28, 2025

I was just diagnosed with HCM And am thinking about ablation. Does Camzyos make it better,...

https://connect.mayoclinic.org/comment/1214180/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jan 15, 2025

Hi curious how you know it’s non genetic ? Are you in a REMS study and...

https://connect.mayoclinic.org/comment/1015133/

Discussion: HOCM & VFib amiodarone, sotalol,camzyos

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Feb 13, 2024

I was wondering if those of you who are currently taking Camzyos are working with your...

https://connect.mayoclinic.org/comment/823077/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 8, 2023

@karukgirl My doctor is at St Francis in NY. I have my first echo since starting...

https://connect.mayoclinic.org/comment/1437209/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 12, 2025

I am on 10mg of Camzyos but still have shortness of breath, tiredness and fluttering in...

https://connect.mayoclinic.org/comment/1303283/

Discussion: Camzyos improved my gradient but my symptoms are not better

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 13, 2025

Hello @maree56, welcome to Mayo Connect! I'm glad you found this site...and all the way from...

https://connect.mayoclinic.org/comment/1044636/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Apr 3, 2024

Allergist said she didn't think it was the Camzyos but that it might be--she said there's...

https://connect.mayoclinic.org/comment/1264986/

Discussion: Camzyos side effect of itchiness?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 23, 2025

Yes when a camzyos rep reaches out to you they want you to be well informed...

https://connect.mayoclinic.org/comment/1214323/

Discussion: Why Camzyos instead of surgery?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jan 16, 2025

@carolinca After my 1 week dose today, I’m not real optimistic about Camzyos. Still have shortness...

https://connect.mayoclinic.org/comment/1568888/

Discussion: Anyone started myqorzo 5 mg? Experience please.

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 7 9:35am

I encourage you to keep asking questions; I'm sure you will make the right decision. To...

https://connect.mayoclinic.org/comment/1583249/

Discussion: How to decide whether to take Camzyos or have surgery?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: 6 days ago

@karukgirl thank you. When I asked my doctor about newer drug, she said I will stay...

https://connect.mayoclinic.org/comment/1508683/

Discussion: Myqorzo: has anyone tried this new alternative to Camzyos?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Feb 18 8:56am

Quick question. Where do you get the Camzyos from ie, local pharmacy, Humana mail order or...

https://connect.mayoclinic.org/comment/1370538/

Discussion: Cost of Camzyos

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Aug 14, 2025

@boatsforlife I've been using Bayshore Pharmacy and they are great. Meds get delivered to my home....

https://connect.mayoclinic.org/comment/1525385/

Discussion: How available is Camzyos outside the US?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 12 12:58pm

Hi @par4rosy, it must be frustrating to wait and wonder and try and live your life...

https://connect.mayoclinic.org/comment/998343/

Discussion: What numbers to expect on Echo after starting Camzyos

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jan 16, 2024

Good thing I’m not a doctor, I got that backwards! Grapefruit can actually INCREASE the effect...

https://connect.mayoclinic.org/comment/873285/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jun 5, 2023

I am 87 years old and have been on 2.5 mg of Camzyos for 18 months...

https://connect.mayoclinic.org/comment/1442621/

Discussion: Amazing result from taking mavacamten

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 19, 2025

so did the Camzyos or the metroprol xl help with your stress induced anxiety? I seem...

https://connect.mayoclinic.org/comment/1142353/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Sep 16, 2024

I have asked my Cardiologist and pharmacy specialist and neither has heard of this I also...

https://connect.mayoclinic.org/comment/1142013/

Discussion: Blood glucose

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Sep 15, 2024

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