Hypertrophic Cardiomyopathy (HCM) Support Group

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Thank you for sharing, Jessica. All the best to you and I hope the Camzyos keeps...

https://connect.mayoclinic.org/comment/1451669/

Discussion: Amazing result from taking mavacamten

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Dec 2, 2025

Mine has and I started camzyos about a month ago. Gradient down from 53 to 9.

https://connect.mayoclinic.org/comment/1448637/

Discussion: LVOT Gradient Increase

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 28, 2025

I have been receiving my Camzyos free with the HealthWell Foundation. You might check it out.

https://connect.mayoclinic.org/comment/1377894/

Discussion: Cost of Camzyos

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Aug 24, 2025

I have not started Camzyos yet. I will comment on progress. I will start on 8/1/24

https://connect.mayoclinic.org/comment/1115081/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jul 31, 2024

Why didn’t Camzyos work for you if I may ask? It didn’t for me either sadly....

https://connect.mayoclinic.org/comment/1102653/

Discussion: Has anyone had surgery for Apical Hypertrophic Cardiomyopathy

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jul 10, 2024

Hi,am Hollywood50. On Camzyos 10mg ICD IMPLANT All echos are good over a year now.

https://connect.mayoclinic.org/comment/1088767/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jun 17, 2024

I had to get off my calcium blocker - Verapamil - two weeks before starting Camzyos.

https://connect.mayoclinic.org/comment/877156/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jun 12, 2023

This sounds really really hard and frightening. You might try a decreased dose of CAMZYOS. Like...

https://connect.mayoclinic.org/comment/1316363/

Discussion: What does heart failure mean with HOCM

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 30, 2025

Thanks for your question. I am wondering the same thing I am on CAMZYOS 7.5 and...

https://connect.mayoclinic.org/comment/1505399/

Discussion: Myqorzo: has anyone tried this new alternative to Camzyos?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Feb 14 8:22am

The doctor that puts you on camzyos will be where your followups and echos will take...

https://connect.mayoclinic.org/comment/1385011/

Discussion: Camzyos treatment location / expertise?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Sep 2, 2025

Thank you for this information. I asked my cardiologist and she said alcohol septal ablation would...

https://connect.mayoclinic.org/comment/1245458/

Discussion: Side Effects of Mavacamten (Camzyos)

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Feb 25, 2025

I find that I sleep a lot. Not sure if it’s the HCM or the camzyos....

https://connect.mayoclinic.org/comment/1218154/

Discussion: I take 5mg Camzyos in the morning.

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jan 21, 2025

Thank you - that is very helpful. I'm surprised that the cap or "maximum out-of-pocket" applied...

https://connect.mayoclinic.org/comment/1214286/

Discussion: Why Camzyos instead of surgery?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jan 16, 2025

My typically low b.p. decreased to 70s over 50s on average while on Camzyos plus I...

https://connect.mayoclinic.org/comment/963175/

Discussion: Camzyos: Can it cause low blood pressure?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 12, 2023

@nanamc1957, WELCOME!! Welcome to Mayo Connect and the Hypertrophic Cardiomyopathy Group. I'm so glad you are...

https://connect.mayoclinic.org/comment/948809/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Oct 16, 2023

Hi John - So glad your gradient is good. I am not familiar with the cordal...

https://connect.mayoclinic.org/comment/1271861/

Discussion: Feeling tired all the time- One month on higher dose of Camzyos

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Apr 1, 2025

Thank you so much for asking. The dizziness has subsided, thank goodness. But, I am still...

https://connect.mayoclinic.org/comment/886033/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jun 27, 2023

You may want to speak with the pharmacist who dispenses Camzyos. They check every drug interaction.

https://connect.mayoclinic.org/comment/1042576/

Discussion: MEDS FOR HCM - DOSAGE

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 30, 2024

Thank you for the reply. I am happy to hear that Camzyos is working for you....

https://connect.mayoclinic.org/comment/1179874/

Discussion: Clinical trial

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 25, 2024

I may be starting Camzyos this week. How are you feeling now? Any side effects?

https://connect.mayoclinic.org/comment/1175278/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 18, 2024

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