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Heart Rhythm Conditions Support Group

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Discussions (30)
POTS
Do you know if people with POTS can develop upper stomach gripping when eating? Been trying to figure out if this is part of my...
Last active: Dec 21, 2024
Thyroid Issues and POTS
Hello everyone. I have reached out to the Mayo Clinic but was declined an appointment. I was told to try to get a referral to...
Last active: Nov 7, 2025
POTS and Ropineral
Before I was diagnosed with POTS I was diagnosed with Restless Limbs. That obviously didn't explain the POTS symptoms, but my then neurologist didn't know...
Last active: Feb 7, 2023
I have symptoms similar to POTS but was told it isn’t POTS
I have been thoroughly tested at the Cleveland Clinic. I have been diagnosed with Orthostatic hypotension. I feel frustrated because it does not seem definitive...
Last active: Nov 21, 2024
POTS in 12yo daughter
My daughter is being looked at for POTS. She has many of the symptoms. Especially anxiety attacks when she wakes up for school which inhibit...
Last active: Nov 4, 2024
Possible POTS diagnosis?
Hi, I recently had a tilt table test and got my test results back on my chart, but have not seen the doctor yet to...
Last active: Apr 25, 2023
Anyone have POTS and Essential Thrombocytosis?
I was diagnosed with ET a year ago and had other unrelated symptoms. I was diagnosed with POTS this week. These could both be related...
Last active: Aug 15, 2024
POTS Diagnosis with coinciding illnesses
If you have been diagnosed with POTS, have you also been diagnosed with other large health that are thought to coincide with why they think...
Last active: Apr 28, 2024
Do I have POTS? Is a TEE exam scary?
Hello everyone! I'm a 20 year old female (5’8, 120lb) and I've struggled with heart 'palpitations' my whole life, but over the past year and...
Last active: Dec 26, 2022
New POTS Diagnosis/Non Medication Management
I am a 21 year old who was just diagnosed with POTS. I have not fainted but have been somewhat dizzy most of the time...
Last active: Nov 27, 2025
Non-Anxiety "Panic Attacks" with POTS?
I'm 27 years old, and 2 months ago (coincident with just before I had an upper endoscopy), I started experiencing symptoms of lightheadedness, dizziness, heart...
Last active: Jan 29 11:18pm
POTS - postural orthostatic tachycardia syndrome
Hi all, is anyone familiar with POTS and if so how has your experience been diagnosing and treating it?I was diagnosed with neurocardiogenic syncope several...
Last active: Dec 12, 2024
Do I have POTS or Panic attack?
Hi, I’m Camila. I’m 23 years old and have been experiencing fainting episodes since I was 13. The first incident happened at school during a...
Last active: Nov 2, 2024
Low dose Naltrexone for POTS helping alot
Hello all. Hope lots of you are getting better. My son has/had POTS. I put him on LDN and he is so much better. So...
Last active: Apr 20, 2023
Afraid to fall asleep: POTS + possible multiple sclerosis
I have POTs and there’s a strong possibility I have Multiple Sclerosis also, my body and the doctors have yet to shake on that still.But...
Support Group: Brain & Nervous System
Last active: Jan 25, 2023
Best POTS article I have ever read
Hello, I just wanted to share this with people looking for more information about POTS. After a lot of research, I have found it to...
Last active: Feb 12, 2023
Having symptoms of POTS and I have been unable to drive
I am a 21 year old female who has been unable to drive for the past 2 weeks. I had what seemed like a panic...
Last active: Nov 30, 2024
POTS, Pre- or Post-COVID: Where did you find treatment and what helps?
Hello- I’m looking for others diagnosed with POTS, whether you had it before or after COVID. I’d like to know if you’re willing to share:...
Last active: Feb 16 9:14am
Should beta blockers be used if you have Wolff Parkinson White?
Hello! I am 42 years old. I have had tachycardia my entire life, diagnosed with POTS in 2013, with pre-excitation in 2019 after my daughter...
Last active: Jul 13, 2025
Heart rate goes up absurdly high in the morning, answers needed
Hi everyone, To start with demographics, I'm a 22 y.o. female with a high-stress lifestyle (breadwinner of family, academic high-achiever, slew of trauma/emotional health issues)....
Last active: Oct 19, 2025