Afraid to fall asleep: POTS and other issues
I have POTs and there’s a strong possibility I have Multiple Sclerosis also, my body and the doctors have yet to shake on that still.
But I’m really struggling with symptoms and it’s one of those things that just comes and goes. But terrifying all the same. This started out on the 19th; the 20th was my birthday and on the 19th my Mom and I went to the antique store and then lunch and came home around 4:00. I came up to my room and took my meds around 7:00. At 7:30 I instantly got the worlds most earsplitting headache, then nausea that almost sent me into my bathroom, except that I couldn’t move. 7:45 it was gone. No meds no vomiting out as quickly as it came.
Friday I slept in the afternoon for about 2 hours. I’ve been really struggling with fatigue lately and family was coming for dinner. At 9:30pm I had meds and went to bed. This is the terrifying bit and it’s done this before starting in 2019 and every 4 months or so since.
As I fall asleep my ears close up, like they do when you yawn. My ears close up and I start to feel like I am vibrating and being electrocuted. I’m convulsing, eyes closed trying to scream for my Mom but she never hears me. With my eyes closed I see sparks in the corner of my vision. It causes me to wake up and then fall asleep again repeating the process over and over again. Until eventually I just fall asleep.
Tonight I’m terrified that it will happen again. I don’t want to do it again. I know I have no choice otherwise. Please tell me this is a thing. Please tell me there’s a name.
I promise with everything in me it is not anxiety. This is really really physical in all forms.