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Head & Neck Cancer Support Group

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Discussions (56)
Gastrostomy Tube (G-Tube): Difficulty finding a formula that works
My husband is currently starting week 4 of his 7 week treatment with Cistplatin and radiation but is having the worst time with finding a...
Support Group: Head & Neck Cancer
Last active: Apr 14, 2024
Feeding tube falls out.
Does anyone else have a problem with their feeding tube balloon deflating and the tube falling out? It has to be replaced at the emergency...
Support Group: Head & Neck Cancer
Last active: Oct 2, 2022
Let's talk G-tube!
I've searched the Mayo forums for ideas and can't seem to find anything. I am really struggling with granular tissue/granuloma forming around my g-tube. I...
Support Group: Head & Neck Cancer
Last active: Jul 1 6:29am
Tube feeding issues causing reflux
Seem to be in a vicious circle of tube feeding Kates Farm formula (started in late January) from Jevity and Hubbie have cycles of reflux...
Support Group: Head & Neck Cancer
Last active: Dec 21, 2025
Feeding tube patients: What's your experience?
I have a G tube in my stomach and am curious about what you tube feed, problems incurred, everything that has worked.. My tube is...
Support Group: Esophageal Cancer
Last active: Dec 11, 2025
What are the lifestyle changes with permanent G-Tube?
Due to the beginnings of possible silent aspiration events and possible aspiration events during eating, what are lifestyle changes like if I were to need...
Support Group: Head & Neck Cancer
Last active: May 14 7:38am
Caring For Someone who Uses A Feeding Tube
Male patient has a catheter as a J-tube. Other than stitches that can be painful, get infected, and break, what is a good way to...
Support Group: Caregivers
Last active: Jan 27, 2020
Feeding tube and trach after throat cancer treatments
My husband was diagnosed with throat cancer in November of 2021. He went through 2 rounds of chemo and radiation. Currently he is cancer free...
Support Group: Head & Neck Cancer
Last active: Jun 17 6:17pm
Any study on life expectancy while on a feeding tube?
Is there a study of the life expectancy of living on a feeding tube.
Support Group: Head & Neck Cancer
Last active: Apr 19 3:48pm
After radiation: Tracheotomy, feeding tube and hard to swallow
After radiation I cannot even take a sip of water I have a tracheotomy and feeding tube 60 % of the time I suffer even...
Last active: Aug 3, 2021
I have questions about G-Tube cleaning, leaking, kinks
I have five questions about G-tube - see pictures below for reference. 1. Photo#1 is of a 2x2 drain sponge after removing - it is...
Support Group: Head & Neck Cancer
Last active: Jul 5 4:45pm
Feeding tube removal: What was the healing process like? Any tips?
I am scheduled to get my mic-key button removed tomorrow. Has anyone been through this process before? What was the healing process like? Any tips?...
Support Group: Head & Neck Cancer
Last active: Nov 24, 2025
Will I have to always worry about my stoma growing over? Keep tube in
I had a total laryngectomy last may, was wondering if I will always have to keep something in my stoma , so it don’t close,...
Support Group: Head & Neck Cancer
Last active: Apr 21, 2024
How do I know when I can get off my feeding tube?
It's been over 7 months since my last radiation treatment for throat cancer. I could not eat because of the pain for months. I can...
Support Group: Head & Neck Cancer
Last active: Dec 21, 2025
Damage to the epoglottic flap from radiation: Will it work again?
I had head and neck cancer (tonsil and tongue base) in 2009. Trismus is a issue that I had been working with since then. Back...
Support Group: Head & Neck Cancer
Last active: 6 days ago
Cordotomy versus Tracheotomy
I am faced with a dilemma. My vocal cords are paralyzed bilaterally from radiation treatment that ended approximately one year ago. Because of this, I...
Support Group: Head & Neck Cancer
Last active: Jul 18, 2021
Late Effects Neck Fibrosis: Anyone tried the PENTO protocol?
Has anybody tried the following regime:PENTOX Protocol: A combination of pentoxifylline and Vitamin E ? My concern even though my doctor said it would be...
Support Group: Head & Neck Cancer
Last active: Jul 11 8:56pm
Healing process after throat cancer treatments: What to expect?
My husband recently finished his metastatic squamous cell tongue cancer treatment , after 35 rounds of radiation and 6 rounds of chemo. His feeding tube...
Support Group: Head & Neck Cancer
Last active: Jun 13 9:52pm
Seeking advice for eating challenges
Good morning, I am recovering from oropharyngeal cancer radiation treatment which ended late last July. I have been working with a swallow therapist but am...
Support Group: Head & Neck Cancer
Last active: May 26, 2024
Anyone dealing with throat lymphedema after throat-cancer treatment?
Is anyone else dealing with throat lymphedema after throat-cancer treatment? My lymphedema is with aspiration that has caused me to get hospitalized for pneumonia now...
Support Group: Head & Neck Cancer
Last active: Aug 29, 2025