Late Effects Neck Fibrosis

Posted by taylorma @taylorma, Jun 28 3:32pm

Has anybody tried the following regime:
PENTOX Protocol: A combination of pentoxifylline and Vitamin E ? My concern even though my doctor said it would be okay, but will closely monitor side effects. I have to take medication through feeding tube and Pentoxifylline is extended release medication. They said have had patients in same situation that tolerate fine. What has been anybody experience?

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omaest | @omaest | Jun 29 7:29am

How does this actually work? Does it slow down the process of neck fibrosis? Does it improve or diminish the fibrosis?

taylorma | @taylorma | Jun 29 9:17am

In reply to @omaest "How does this actually work? Does it slow down the process of neck fibrosis? Does it..." + (show)

@omaest It reduces inflammation and helps blood flow to the fibrotic area and the vitamin axis used as a antioxidant. The combination has shown signs of improving neck fibrosis. This is what my Cancer Survivor doctor suggested to me, so I was trying to see if anybody has used this combination.

omaest | @omaest | Jun 29 10:43am

Thank you. I take all medications and nutrition through a tube so I don't know if it would work for me. It is something that I will ask about the next time I go to my "survivorship appointment". My radiation was in 2003 and the fibrosis has been very gradual but now is effecting me more.