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Brain Tumor Support Group

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Discussion
Glioblastoma Grade 4: How do handle family conversations, sharing?
Our long story short, seizure occurred early March with an undetermined spot on my brain after MRI (infection, fluid or tumor). After several consultations with...
Support Group: Brain Tumor
Last active: Oct 5, 2023
Discussion
End is near for son with stage 4 Glioblastoma: Thanks for your support
My 34 yr old son Justin was diagnosed with a Stage 4 Glioblastoma Brain Tumor 4 yrs ago due to him having severe headaches and...
Support Group: Brain Tumor
Last active: Jan 21 11:01am
Discussion
Can anyone tell me about the Optune device for glioblastoma?
My husband was diagnosed about a month and a half ago with glioblastoma. He just finished his radiation and his first round of chemo treatments....
Support Group: Brain Tumor
Last active: Aug 31, 2025
Discussion
Glioblastoma: Anyone have difficulty walking, use of legs and arms?
My husband was diagnosed with Glioblastoma last August, affecting both hemispheres of his brain. He underwent surgery to remove 90% of the cancerous cells from...
Support Group: Brain Tumor
Last active: Apr 18 3:35pm
Discussion
How to help my spouse with stage 4 Glioblastoma while being so sad?
HiI am a new member dealing with caregiving for my husband who has reoccurrence Glioblastoma. Would like to hear ideas about how to help him...
Support Group: Caregivers
Last active: Mar 16, 2025
Discussion
Why are the doctors waiting to start chemo and radiation?
Why are the doctors waiting to start chemo and radiation? Or 50-year-old son was just diagnosed with grade 4 inoperable glioblastoma. A biopsy was performed...
Support Group: Brain Tumor
Last active: Jul 31 6:56am
Discussion
Home Care for Brain Tumor Patients
This is a bit off topic perhaps but do bear with me. My daughter has glioblastoma and at this point she is no longer getting...
Support Group: Brain Tumor
Last active: Jul 17, 2022
Discussion
Is anyone enrolled in the ATM-inhibitor WSD0628 trial?
My husband's Glioblastoma has progressed. He will be enrolling in the clinical trial of the ATM-inhibitor WSD0628. We are looking to connect with anyone else...
Support Group: Brain Tumor
Last active: Feb 17 5:18pm
Discussion
2nd Phase of Glio treatment
Hello Everyone- I will be starting the 2nd phase of treatment for glioblastoma later this week. Has anyone been through this.....5 days of temozolomide and...
Support Group: Brain Tumor
Last active: Mar 25 6:36pm
Discussion
GBM after two years of treatment survival of 69 year old man?
My husband 69 years was diagnosed with a glioblastoma grade 4. He had surgery, radiation and chemo. It has been two years and the GBM...
Support Group: Brain Tumor
Last active: Jul 26 4:09pm