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Brain Tumor Support Group

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Discussions (22)
Gamma knife for meningiomas
Greetings - do any followers of this group have any experience with the use of the "gamma knife" when arresting the growth of benign meningiomas?...
Support Group: Brain Tumor
Last active: Jun 7, 2024
Gamma knife and nerve damage
I had gamma knife in January 2023 for 3 tumors, one being a schwannoma. In November I started experiencing numbness in my face on the...
Support Group: Brain Tumor
Last active: Aug 22, 2024
Swelling following gamma knife procedure for meninigioma
A family member had gamma knife radiation at Mayo for a brain meningioma in August and recently had neuro episodes suspected to be post procedure...
Support Group: Brain Tumor
Last active: Jul 28, 2019
Side effects of gamma knife treatment
I had gamma knife treatment two months ago. During the past couple of weeks my balance has worsened to the point I cannot do my...
Support Group: Brain Tumor
Last active: Feb 22 3:18pm
Stereotactic Radiosurgery Surgery (Gamma or Cyberknife) for Meningioma
I will be having Gamma Knife Radio Surgery for a meningioma that is growing. Have any of you had this procedure and does it work?...
Support Group: Brain Tumor
Last active: Jan 6, 2025
Anyone having Gamma Knife for parafalcine (parafalx) meningioma?
I will be having Gamma Knife for a parafalcine meningioma, likely this summer (2024). My tumour was an incidental finding on an MRI for follow-up...
Support Group: Brain Tumor
Last active: Jun 22, 2024
Choosing how to handle a regrowth of a meningioma gamma knife/surgery
Original larger meningioma removed surgically 2019 - smaller tumors have grown since (4) and they have been removed by gamma knife. Now a previous growth...
Support Group: Brain Tumor
Last active: Apr 11, 2023
Lump by screw from gamma knife surgery, anyone else?
I have a lump where the screw was put in for my gamma surgery. It has become painful and I am not sure if I...
Support Group: Brain Tumor
Last active: May 15, 2020
Gamma Knife for Meningioma & dAVF in ONE treatment session
Has anyone in this group experienced Gamma Knife for treating a meningioma and a dural arteriovenous fistula (dAVF) in ONE treatment session? If so, what...
Support Group: Brain Tumor
Last active: May 1, 2024
What were your experiences with the head frame for Gamma Knife?
I was diagnosed with a Brain Tumor in March, they think it’s more likely a Meningioma but they aren’t ruling out Acoustic Neuroma. I saw...
Support Group: Brain Tumor
Last active: Dec 15, 2020
When can I drive after gamma knife radiation for a meningioma?
When am I allowed to drive again? On Friday I completed my last session (out of 5 sessions) of gamma knife radiation for my benign...
Support Group: Brain Tumor
Last active: Jul 29, 2025
Gamma knife treatment in 2018 for meningioma around the optic area
Like I said I had the gamma knife treatment in aug 2018 and was told the tumor would shrink a little every year. I had...
Support Group: Brain Tumor
Last active: Aug 10, 2020
Has anyone had Gamma Knife for a glomus jugulare benign tumor?
I had Gamma Knife in January 2022. I am doing very well. My tumor had not shrunk at this point. I was told it could...
Support Group: Head & Neck Cancer
Last active: Jan 21 11:31am
Have you had Gamma knife surgery? What can I expect?
My partner is having Gamma Knife Surgery for a meningioma. If you’ve had it can you tell me what to expect? Pain after? How long...
Support Group: Brain Tumor
Last active: Jan 29 12:32am
What is your experience with GammaTile Therapy for Meningioma?
Needing further treatment for recurring meningioma 3. One set of physicians will reradiate and second opinion states to consider surgery for resection on new growth,...
Support Group: Brain Tumor
Last active: Apr 1, 2023
Anyone taken Lomustine for glioblastoma after recurrence while on TMZ?
My husband is 16 months post diagnosis for GMB. Has been on TMZ but MRI on March 10 showed small recurrence. To have Gamma Knife...
Support Group: Brain Tumor
Last active: Apr 18 4:25pm
Chronic Fatigue following Radiation for Meningioma
I had Gamma Radiation almost 3 years ago and still have bouts of fatigue. Has anyone else had fatigue last this long?
Support Group: Brain Tumor
Last active: Aug 14, 2022
Neurosurgeon visit: Should I get another appointment?
Should I get another apt?Discovered I had a 12 mm meningioma after MD ordered MRI for inner ear problem.I went to first apt yesterday after...
Support Group: Brain Tumor
Last active: Nov 30, 2023
Multiple meningiomas in past, but now my new tumor is GBM4
Over the past 22 years I have been diagnosed and had surgery for multiple meningiomas. The first surgery was 22 years ago as my tumor...
Support Group: Brain Tumor
Last active: Aug 5, 2024