Gamma knife for meningiomas

Posted by lisakuehl @lisakuehl, Aug 9, 2018

Greetings – do any followers of this group have any experience with the use of the "gamma knife" when arresting the growth of benign meningiomas? Thanks!

Liked by EES1

Hello, my sister had Gamma Knife radiation last year at Mayo Rochester. She goes back this month for another MRI to see if the tumors responded, hopefully shrunk. I will be back in touch with her results.

@nancye3

Hello, my sister had Gamma Knife radiation last year at Mayo Rochester. She goes back this month for another MRI to see if the tumors responded, hopefully shrunk. I will be back in touch with her results.

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Did she have any side effects from the treatment?

I had this done last December, I had 5 treatments and my tumor is slowly shrinking.

My sister said the head piece was not as bad as she expected. It did hurt a little at first. She had some headaches and some numbness after but no serious side effects..

@mrser52

I had this done last December, I had 5 treatments and my tumor is slowly shrinking.

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Did you experience any side effects or unpleasantries during the treatment?

@nancye3

My sister said the head piece was not as bad as she expected. It did hurt a little at first. She had some headaches and some numbness after but no serious side effects..

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Was any type of sedation required during the treatment?

Welcome, @lisakuehl,

I'm so glad you've joined Connect, and that you've "connected" with @nancye3 and @mrser52. May I ask if you want to find more information about gamma knife and meningiomas for yourself or a loved one?

@mrser52

I had this done last December, I had 5 treatments and my tumor is slowly shrinking.

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I had no side effects during my treatment, but I did have a hard time with the treatment. Having that tight mask over my face and head. I had to take Xanax so I wouldn't freak out.

@nancye3

My sister said the head piece was not as bad as she expected. It did hurt a little at first. She had some headaches and some numbness after but no serious side effects..

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You can ask for something if you feel you can't handle the mask. Ask ahead of time before you go to your appointment.

@kanaazpereira

Welcome, @lisakuehl,

I'm so glad you've joined Connect, and that you've "connected" with @nancye3 and @mrser52. May I ask if you want to find more information about gamma knife and meningiomas for yourself or a loved one?

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I'm asking for a family member who has this procedure scheduled at Mayo next week.

Hi @lisakuehl
There are several discussions about meningiomas in the Brain Tumor group that you may be interested in reading, specifically this one started by @nancye3 when she was investigating gamma knife for her sister and Elaine and others provided their insights.
– Meningiomas. Gamma knife or Cyber Knife. Which is more effective ? https://connect.mayoclinic.org/discussion/meningeomas-gamma-knife-or-cyber-knife-which-is-more-effective/

Keep asking questions. Many are here to share their experiences.

I had Gamma radiation on Jan 11 and had weird hazy/double vision this am. It was vertical and horizontal. I have had vertical double vision at night but this didn't resolve until I got up. Usually, it resolves after a few seconds. Have any of you had this? I already had my follow up with the radiologist but didn't have this at that time. Thanks

Liked by mrector

@jmb73

I had Gamma radiation on Jan 11 and had weird hazy/double vision this am. It was vertical and horizontal. I have had vertical double vision at night but this didn't resolve until I got up. Usually, it resolves after a few seconds. Have any of you had this? I already had my follow up with the radiologist but didn't have this at that time. Thanks

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Hi, @jmb73 – I moved your post here to this discussion, "Gamma Knife for Meningiomas," so you could discuss with others talking about this subject. However, I realize that another similar thread you started would be perfect for your update here on what happened with your vision from the gamma radiation, if you would post it in that discussion https://connect.mayoclinic.org/discussion/gamma-knife-radio-surgery-for-meningioma/.

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