Gamma knife treatment in 2018 for meningioma around the optic area

Posted by nanatessie @nanatessie, Aug 8 3:28pm

Like I said I had the gamma knife treatment in aug 2018 and was told the tumor would shrink a little every year. I had an mri last aug 2019 to see if any change and there was absolutely NO change. I am scheduled for another mri aug 11 to see if any change. I still have the same problems I was having before the gks-headaches, eye problems-and am wondering why it hasn't shrunk and if I should have something else done. I also have bleeding in my brain and have been diagnosed with amyloid angiopathy. Could these be related?

Hi @nanatessie and welcome to Mayo Clinic Connect. I think you might also be interested in this discussion where @jill333 @jmb73 @kkimmers007 and @intheyear2525 talk about gamma knife treatment. I'd also like to bring @pegorr @mrector and @mkjames who have experience with meningiomas involving the optic nerve.
– Gamma Knife Radio Surgery for Meningioma: https://connect.mayoclinic.org/discussion/gamma-knife-radio-surgery-for-meningioma/

You may also be interested in this discussion in the Cerebrovascular Diseases group. While the discussion was started back in 2011, it remains active today.
– Cerebral amyloid angiopathy https://connect.mayoclinic.org/discussion/cerebral-amyloid-angiopathy/

Tessie, have you had a discussion with your specialists about how cerebral amyloid angiopathy might affect some of the symptoms you're experiencing? Or is it clear that they are caused by the meningioma? Have other treatment options been suggested to shrink or treat the tumor?

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Hi @nanatessie ,I have had some experience with meningiomas involving the optic nerve. I had a resection in 2010 for that one(on the right side) and 2 others.My neuro chose a more conservative approach to do no harm to my optic so some tumor was left. I had cyberknife radiation on that tumor and a tumor lying next to my brain stem, then in 2017 (I think) had gamma knife on a tumor close to my optic nerve on the left side. Unfortunately the tumor on the right has started growing again, actually pushing out the side of my face, so will be doing another surgery in Sept. I'm a glass half full, even if it's sour milk:-) kind of gal so just take things as they come. I think we're all different so each case has it's own individual approach. None of my tumors have shrunk with either type of radiation and I also have eye issues, dizziness, nausea, etc. but, on the bright side, I'm alive:-) I'm glad I did the radiation and the surgeries and will just keep plugging on, in pain a great deal of the time, but also trying not to be one:-) I wish you all the best and have great admiration for all tumor warriors. Hoping you can feel the love. peg

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@colleenyoung

Hi @nanatessie and welcome to Mayo Clinic Connect. I think you might also be interested in this discussion where @jill333 @jmb73 @kkimmers007 and @intheyear2525 talk about gamma knife treatment. I'd also like to bring @pegorr @mrector and @mkjames who have experience with meningiomas involving the optic nerve.
– Gamma Knife Radio Surgery for Meningioma: https://connect.mayoclinic.org/discussion/gamma-knife-radio-surgery-for-meningioma/

You may also be interested in this discussion in the Cerebrovascular Diseases group. While the discussion was started back in 2011, it remains active today.
– Cerebral amyloid angiopathy https://connect.mayoclinic.org/discussion/cerebral-amyloid-angiopathy/

Tessie, have you had a discussion with your specialists about how cerebral amyloid angiopathy might affect some of the symptoms you're experiencing? Or is it clear that they are caused by the meningioma? Have other treatment options been suggested to shrink or treat the tumor?

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I have been told that the amyloid angio would definitely cause these but also the meningioma could cause it. I have been told so many different things that I am not sure what to think. Thank you for those other places to look. Do I just push on those places and it'll come on?

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@nanatessie

I have been told that the amyloid angio would definitely cause these but also the meningioma could cause it. I have been told so many different things that I am not sure what to think. Thank you for those other places to look. Do I just push on those places and it'll come on?

Jump to this post

Yes, @nanatessie, simply click the blue text (links) to go to the other places, which are discussions with members on the topics of interest to you.
– Gamma Knife Radio Surgery for Meningioma: https://connect.mayoclinic.org/discussion/gamma-knife-radio-surgery-for-meningioma/
– Cerebral amyloid angiopathy https://connect.mayoclinic.org/discussion/cerebral-amyloid-angiopathy/

Hi @pegorr, so good to get your experience and perspective. Nice to hear from you.

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