Lump by screw for gamma knife surgery

Posted by jmb73 @jmb73, Mon, Aug 12 5:07am

I have a lump where the screw was put in for my gamma surgery. It has become painful and I am not sure if I should see my PC or neuro surgeon or just leave it alone. I had my Gamma surgery on Jan 11. Has anyone had this problem?

Hi @jmb73, that must be so frustrating to have this pain by the screw for your surgery.

I'd like to tag @vickylynn and @jill333 may be able to offer you support and share their experience with you.

whenever you have concerns it is always best to discuss with your physician. When do you get to see them next?

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@ethanmcconkey

Hi @jmb73, that must be so frustrating to have this pain by the screw for your surgery.

I'd like to tag @vickylynn and @jill333 may be able to offer you support and share their experience with you.

whenever you have concerns it is always best to discuss with your physician. When do you get to see them next?

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I see a neurologist on 8/22 for my empty sella, finger tremors and other issues that my endroconolgist wants him to check. Would he be the one to check my lump or should I call my PC?

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@jmb73

I see a neurologist on 8/22 for my empty sella, finger tremors and other issues that my endroconolgist wants him to check. Would he be the one to check my lump or should I call my PC?

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Hi Joan, I'm sorry to hear you're still having problems from gamma knife. My pin sites healed within a few weeks. Have you contacted your neurosurgeon yet who performed your gamma knife about this? I think he would be a good starting point. My Best, Jill

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@jmb73

I see a neurologist on 8/22 for my empty sella, finger tremors and other issues that my endroconolgist wants him to check. Would he be the one to check my lump or should I call my PC?

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@jmb73 I agree with @jill333. I think you should bring up the lump issue with your neurosurgeon. You can start with talking to your neurologist since you are seeing him in a few days. Please let us know what you find out.

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Like you all suggested, my neurologist said to contact my neuro-surgeon. He said he knows nothing about Gamma surgery. He was more concerned about my tremors. He said they should be really bad in 3 years and then he would put me on something! I am not going back to him.

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@jmb73

Like you all suggested, my neurologist said to contact my neuro-surgeon. He said he knows nothing about Gamma surgery. He was more concerned about my tremors. He said they should be really bad in 3 years and then he would put me on something! I am not going back to him.

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Thanks for the update, @jmb73. I'll be interested to hear what you find our from the neuro-surgeon when you follow-up. What will you do about the tremors?

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@jmb73

I see a neurologist on 8/22 for my empty sella, finger tremors and other issues that my endroconolgist wants him to check. Would he be the one to check my lump or should I call my PC?

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Hi, Along with multiple brain tumors, my MRI also indicates an empty sella. I'm not sure what that means and it doesn't seem like my doctors are concerned about it. Do you think I should be. Wondering what you found out. I didn't have a lump from my gamma knife and hope yours is healing. peg

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I called the neuro-surgeon and he requested pictures of the lump. He was going out of town but said I needed to be seen immediately. I saw the PA yesterday and I have an infection at the pin/screw site. The other sites are getting infected too. She said I have probably had it since the surgery last Jan. and it has just gotten progressively worse. Thank you for telling me to call them. I did go to my PC and she put me on a cortisone salve but I didn't take it. I decided to wait for my appointment with the PA. She was glad that I didn't use it as the cortisone would have slowed the healing. I think my PC thought it was dermatitis as it's been 81/2 months since the surgery! I am currently on 500 mg of Cipro twice a day for 7 days and a betadine swab for the days I wash my hair. I see her again in a week. If it's not 100% then she will order a CT scan and see if it has progressed even further. I didn't ask what will happen if it has. Thanks again for the advice.

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Joan, thanks for the update. I hope the antibiotic will knock out the infection and you won't have any more problems with it. Did the PA or neurosurgeon say why they thought this happened? Was it just bad luck that the pin site got infected? Best wishes, Jill

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The PA said it could be as a result of my low immune system. She said we all have staff infection on our skin and even though I did what they said and washed my hair every day for 4 days after the gamma surgery, she said I could have gotten it then and I could have had this infection since the surgery. She doesn't know if it's a staff infection. So she put me on Cipro which is a broad spectrum antibiotic. I am lucky that my husband is putting on the betadine as I can't see it. Then I wait until it's dry- about 30 minutes. Then I wash it out. I don't know if it's the antibiotic, my other diseases (Sjogren's, fibromyalgia, Afib, osteoarthritis and more) or the infection but I feel awful. I have been running a low grade fever for many months and have had really bad fatigue but never connected it with the lump. Hopefully, the antibiotic will make me feel better. I live in Florida and I hope the hurricane goes out to sea so I can make my appointment on Thurs. Thanks for all your support.

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@pegorr

Hi, Along with multiple brain tumors, my MRI also indicates an empty sella. I'm not sure what that means and it doesn't seem like my doctors are concerned about it. Do you think I should be. Wondering what you found out. I didn't have a lump from my gamma knife and hope yours is healing. peg

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My neuroogist said that neurosurgeons and neurologists are never worried about an empty sella. However, he said to check with my endocrinologist as it could be a sign of a pituitary issue. My endocrinologist has ordered blood tests to see if I have hypothyroidism. I am always cold, have put on weight and am very tired. Every female in my family has some form of thyroid issue so I might have it. Please keep checking your screw sites. Take care, Joan

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I saw my PC and she is concerned that they didn't do an MRI of my brain to see if everything is ok. Plus I am having a headache in that area. She thinks the headache might be from arthritis so I am having an MRI of my neck too. The pin site looks healed and the other 2 pin sites that the neuro PA's said were scar tissue have disappeared. I figure they were related to the infection too. I should be used to MRI's but I am not looking forward to 45+minutes in the machine but I do want answers. She also is sending me to a new endocronlogist.

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Hi Joan, Glad the infection has cleared up! You may already know about wide bore MRI's, but if not, ask for one whenever you need an MRI. I am very claustrophobic and I always request a wide boar machine. It is a little wider on the sides, so you don't feel as closed in. Also, a mirror helps a lot. The mirror enables you to look in the mirror above your face and see out of the machine. You can see your legs and feet and you can see through to the glass and see the tech who sits behind the glass during the MRI.
I've been having headaches also for the last few months, but not my usual migraines. These headaches are very sudden onset, severe throbbing all of a sudden and always in my right temple. I had an MRI and MRA (to check for aneurysm) – fortunately, both were normal. I also have neck pain. I thought the headaches were causing the neck pain. You made a great point – maybe it's the other way round and could be my neck pain is causing these headaches. I'm going to look into that … Best wishes and please keep us informed on how you are doing, Jill

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I had the MRI's of my brain and neck. The tech had said 45minutes but she meant for each MRI so I was in the machine for 1 hour and 1/2. The Diazapan started to wear off after she injected the contrast. It wasn't pleasant but I did it! The infection is cleared from the brain but the neck MRI showed severe arthritis pinching a nerve and that is causing the headache. My PC wants me to go to pain management but I am going to use medical marijuana and it is keeping the pain manageable. My cardiologist is concerned about the pain as it can harm the heart and I have AFIB & PVC's.

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I didn't finish but hit the enter button by accident! I am concerned that the Diazapan didn't last the 12 hours that the PC said it would. When I had the Gamma surgery, they gave me Versed and I had an opposite reaction. It made me hyper! The nurse gave me my CBD and it calmed me down. The Dr. had told me to bring my CBD with me. I strongly recommend CBD for pain. I take .7mmCBD with .3 of THC and it takes the pain away or at least makes it manageable. I also use heat on my neck. I am afraid of neck surgery since I have such a low immune system especially IgM. Jill, you might have the same problem with arthritis in you neck and bone spurs pushing on your nerve. My PC showed me a picture of the nerve that goes from your neck to the top of your head and that is exactly where the pain/headache is. Sometimes it is severe – like now- and I am waiting for the CBD to kick in. Good luck and let me know how you feel and if your Dr. thinks it could be from the neck. Joan

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