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Public Support Group 333 total results
Discussions (63)
Anyone taken Lomustine for glioblastoma after recurrence while on TMZ?
My husband is 16 months post diagnosis for GMB. Has been on TMZ but MRI on March 10 showed small recurrence. To have Gamma Knife...
Non Operable Glioblastoma 4: Tips for chemotherapy and radiotherapy?
Hi everyoneI have a non operable glioblastoma and wanted to see if anyone else has managed just with chemotherapy and radiotherapy? I haven’t started treatment...
Glioblastoma: Anyone else struggle with being a caretaker?
Just wondering if anyone else struggles with being a caretaker for their spouse?My husband was diagnosed with a Glioblastoma over 4 years ago. Now while...
Side effects from medication or progression of glioblastoma?
My husband, David, had surgery to remove a tumor in his frontal lobe on May 10th this year. The biopsy presented with Glioblastoma Grade 4....
Glioblastoma grade 4 thalmic tumor unresectable
Jan 12th, we thought my 62 y.o husband had a mikd stroke with left side hemiparesis. After scans showing a basal ganglia tumor, he was...
How do I handle the mood changes caused by glioblastoma?
How do I handle the mood issues. I try to not ask questions or even talk about anything that can set him off
Caregiving taking its toll: Stage 4 Glioblastoma & Lymphoma
History: Husband is 84 born 1/30/40Tested on Oct 2019 w/GlioblastomaSurgery Jan 2020 Tumor sucked outRadiation 34 treatmentsChemo pills dosed 5 days per month for 15...
Supporting Glioblastoma Patient: What can I expect as the caregiver?
My husband will have resection surgery next week. What should I expect when he comes home? How can I prepare? It's me, my husband and...
Spouse behavior. Husband has inoperable grade 4 glioblastoma
Our 50 year-old son who lives eight hours from us has been diagnosed with grade 4 inoperable glioblastoma. He's starting his third week of chemo/radiation....
My guy has Glioblastoma: how to help fulfill his legacy?
My guy has a glioblastoma. We are five weeks into the beginning of this information, and we met exactly 10 months ago, and I knew...
Friend has Brain Cancer Glioblastoma: What are the next steps?
A friend Jane blacked out yesterday and was told in the ER that she has inoperable brain cancer and only a year to live. I...
My 84 year old mother diagnosed with Glioblastoma
Hers is wildtype grade 4, main tumor in the right frontal lobe and 2 satellite tumors nearby. Left side paralyzed and having a hard time...
What are the chances of sruvival beyond 24 months with Glioblastoma?
What are the chances of survival beyond 18 to 24 months with Glioblaastoma
Offering hope: Dad's journey with Glioblastoma stage 4
I thought this may give others some hope.My Dad 72 was diagnosed last April 2024 with a GMB stage 4 after having some vauge episodes...
How Have Your Glioblastoma Experiences With Temozolomide Been?
Has anyone decided to opt out of the 6/12 months, 5/23 days option for taking temozolomide (TMZ) in (generally) a dosage 2X the dosage you...
Glioblastoma: Could original scan have missed the tumor?
I had a cat scan done in late April that doctors said was unremarkable. By august my symptoms were worse with headaches being main complaint....
Glioblastoma stage 4 -my story so far
Glioblastoma stage 4 diagnosed 6 weeks ago: I'm 65 and had a headache. MRI showed brain tumor on left side. Next day I was helicopter...
My dad has been diagnosed with stage 4 glioblastoma inoperable
My dad was diagnosed just before Christmas with glioblastoma stage 4, which is inoperable. Is anyone else going through this? I am really struggling with...
Anyone have glioblastoma, IDH Wild-type, WHO Grade 4?
Wife was just diagnosed with glioblastoma, IDH Wild-type, WHO Grade 4. She just had surgery 5 days ago to remove the tumor. I am now...
Plz guide regarding new therapies for glioblastoma that can help
My mother 68 years old is diagnosed with left temporal glioblastoma ( wild type ) grade 4 , operated on 23 April, started on proton...
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