My dad has been diagnosed with stage 4 glioblastoma inoperable

Prayers and prayer chain with group prayer 🙏 anywhere and everywhere you
can get a chain started, im sending a prayer for you and you're dad
now--------sent and have a blessed evening 🙏

Hello, @justineb I'm Scott, and I was my wife's caregiver during her war with brain cancer. She, too, had no medical interventions given the location of her tumor. That said, there were other things she and I did that helped her, our family, friends, and me.

We immediately made certain our legal and financial affairs were in order. We updated our wills, got POAs for legal, real estate, and medical decisions. She also signed a HIPAA approval for her doctors to speak directly to our adult children and me. After discussions, she decided her mantra and decisions were going to always be driven by 'quality of life rather than quantity'. She asked two people to visit her, with whom she felt she needed to make amends. She gave some of her special things to certain people since she wanted to tell them herself why they were important to her and why she wanted that person to have a specific item. She made decisions on her final wishes and even planned her Celebration of Life.

All these decisions helped her find some peace, filled some of her time and thoughts, and helped all of us later on.

Strength, Courage, & Peace

My husband had stage 4 inoperable glioblastoma also. He did receive treatment in the form of radiation and chemotherapy. His tumor responded very well to treatment, however his quality of life deteriorated rapidly because his very mild dementia erupted into full on dementia. These were treatment side effects we did not anticipate, but they are common.

Truly he was sort of ok with all of that because his awareness was so low. He felt cared for by all the treatments and attention. He never had physical pain and the severe dementia meant he forgot he was dying. Caring for him became more and more difficult as his awareness and ability to cooperate diminished.

It’s a hard road and your wife made what I consider to be the better decision, but my husband deserved to make his own decision and I honored his wishes. He lived 19 months after diagnosis.

May your wife have good time with her loved ones on the final part of her journey.

@justineb, I thought I would check in. It is hard to accept such a diagnosis of a loved one. Has your dad's care team talked about palliative or comfort care for him and your family? How are you doing?

This is one of the fastest growing tumors.our daughter had surgery to get what they could.but it grew back quickly.spend time and talk to each other.share that both of you are scared.

Just saying it like it is , my angel richard said prayer groups, prayer
chains and believe in your faiths. sending a prayer for you and the
family now=========== sent and may my Blessings be in your day.