Friend has Brain Cancer Glioblastoma: What are the next steps?

Posted by susan159 @susan159, Jan 23 9:21am

A friend Jane blacked out yesterday and was told in the ER that she has inoperable brain cancer and only a year to live. I want to find some hope for her. She sent me the MRI report which says gioblastoma. But does this have to be an immediate death sentence? Is there any hope of treatment for her? Does anybody know where her next steps should be taken? I'm hoping that the ER docs don't actually know about treatment options and that if she can get to the right people there might be some hope. If anybody has any insight, I sure would appreciate it.

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Hello @susan159. Oh golly, this news of your friend’s brain cancer has to be quite a shock. Glioblastoma is a very aggressive form of cancer. While it’s challenging, there can be options with surgery, proton radiation and chemotherapy.

Your friend’s next step should be to reach out to a larger medical institution such as Mayo Clinic or a university/teaching hospital soon! ER doctors are not the ones to make the treatment options for her.

Here’s the link to Mayo Clinic if she’d like to make an appoint at any one of the 3 sites in Rochester, Jacksonville FL or Phoenix. The link takes you to Mayo’s home page where you’ll see the phone numbers for each clinic.
http://mayocl.in/1mtmR63
I’d also encourage you or your friend to read this Connect discussion:

@otis123's story here:
– My Husband's journey with Glioblastoma https://connect.mayoclinic.org/discussion/my-husbands-journey-with-glioblastoma/
~~~
Here is the link to the Brain Tumor group with other members who have gone through this or have loved once with Glioblastoma. https://connect.mayoclinic.org/group/brain-tumor-support-group/

Susan, does your friend, Jane, have any family living nearby?

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@loribmt

Hello @susan159. Oh golly, this news of your friend’s brain cancer has to be quite a shock. Glioblastoma is a very aggressive form of cancer. While it’s challenging, there can be options with surgery, proton radiation and chemotherapy.

Your friend’s next step should be to reach out to a larger medical institution such as Mayo Clinic or a university/teaching hospital soon! ER doctors are not the ones to make the treatment options for her.

Here’s the link to Mayo Clinic if she’d like to make an appoint at any one of the 3 sites in Rochester, Jacksonville FL or Phoenix. The link takes you to Mayo’s home page where you’ll see the phone numbers for each clinic.
http://mayocl.in/1mtmR63
I’d also encourage you or your friend to read this Connect discussion:

@otis123's story here:
– My Husband's journey with Glioblastoma https://connect.mayoclinic.org/discussion/my-husbands-journey-with-glioblastoma/
~~~
Here is the link to the Brain Tumor group with other members who have gone through this or have loved once with Glioblastoma. https://connect.mayoclinic.org/group/brain-tumor-support-group/

Susan, does your friend, Jane, have any family living nearby?

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Thanks for the response. I'm sending it on to Jane's daughter so she can decide about Jane reading it. Jane does have a daughtre who lives nearby (single working mom), but no partner. She's very concerned about maybe not being able to live alone or being able to drive. Right now she's thinking she doesn't want to undergo any type of treatment, but I'm hoping that when she's seen by cancer specialists she will at least entertain the thought of treatment. If she reads some of this blog, maybe she'll change her mind….

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@susan159

Thanks for the response. I'm sending it on to Jane's daughter so she can decide about Jane reading it. Jane does have a daughtre who lives nearby (single working mom), but no partner. She's very concerned about maybe not being able to live alone or being able to drive. Right now she's thinking she doesn't want to undergo any type of treatment, but I'm hoping that when she's seen by cancer specialists she will at least entertain the thought of treatment. If she reads some of this blog, maybe she'll change her mind….

Jump to this post

I hope she changes her mind! It’s sad to just ‘throw in the towel’ without even trying. It’s way too soon to make that type of decision without having seen an oncologist. She has a daughter and friends who would miss her terribly and it’s certainly not worth giving up this early in the game.
You’re a wonderful friend and Jane’s very lucky to have you in her corner. Maybe between you and her daughter you’ll have some positive impact. 🙂
Keep me posted, ok?

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