Support Groups

Brain Tumor Support Group

Public Support Group
455 total results
Discussions (52)
Recovery after Meningioma Surgery
Just trying to find out if anyone in this group has had surgery recently at Mayo? Wondering how long my sister Jill will need to...
Support Group: Brain Tumor
Last active: Jul 30, 2017
Has anyone traveled for their meningioma surgery?
Hi--has anyone traveled for their meningioma surgery? If so, can you tell me how long you stayed close to the surgical center, and when you...
Support Group: Brain Tumor
Last active: 1 day ago
Left Frontal Meningioma surgery recovery
I'm looking for others who had this surgery and how their recovery is going.I had my surgery 5 weeks ago. Recovery is going well. I...
Support Group: Brain Tumor
Last active: May 18, 2020
Left Anterior Clinoid Meningioma Surgery
Hi my name is Rosanne, i’m 52 and I have recently been diagnosed with a 1cm left anterior clinoid meningioma that was found because of...
Support Group: Brain Tumor
Last active: Mar 15, 2019
Has anyone had surgery for a Secretory Meningioma?
Has anyone had surgery for a secretory meningioma and how long ago..were you tired for a long time? Can you feel your head? Did it...
Support Group: Brain Tumor
Last active: Jul 31, 2022
Stereotactic Radiosurgery Surgery (Gamma or Cyberknife) for Meningioma
I will be having Gamma Knife Radio Surgery for a meningioma that is growing. Have any of you had this procedure and does it work?...
Support Group: Brain Tumor
Last active: Jan 6 2:22pm
How did you prepare mentally for Meningioma surgery?
Having surgery on September 13 to remove a meningioma on the left frontotemporal lobe. How did others prepare mentally for the surgery? I am becoming...
Support Group: Brain Tumor
Last active: Apr 26, 2024
Cerebellopontine Angle (CPA) Meningioma Surgery: Recovery tips?
Hi--I'm scheduling my cpa meningioma retrosigmoid crainotomy for this summer, and I was wondering if any of you could share your recovery with me if...
Support Group: Brain Tumor
Last active: Mar 31 7:29pm
Grade 2 Meningioma Diagnosis: Looking for a place to share my worries
Hello,I had a craniotomy Jan 30 for a CPA meningioma. Challenging surgery but doc called it a total resection. Surgery report states some affected dura...
Support Group: Brain Tumor
Last active: Mar 26, 2024
Chronic pain after craniotomy
I had a craniotomy for an optic nerve meningioma. The surgery was a success and I got a lot of my vision loss back. The...
Support Group: Brain Tumor
Last active: 3 days ago
Tough recovery after 2nd meningioma surgery
Hello good people, My mom (69F) had her recurrent left frontal atypical meningioma (6cm) removed 3 months ago. Her first surgery was 10 years ago...
Support Group: Brain Tumor
Last active: Jul 1, 2023
Newly Diagnosed With Meningioma: What can I expect with surgery?
My journey started with a massive headache and nausea that wouldn't stop. "Stress at work" and a migraine was what the NP at my local...
Support Group: Brain Tumor
Last active: Jul 3, 2020
Feel a sore bump on head after surgery in 2007 for meningioma
I had brain surgery for meningioma on my right side in 2007. I have MRI done every year after surgery until now. So far it...
Support Group: Brain Tumor
Last active: Nov 29, 2024
Many symptoms still 2 months after meningioma surgery
I am still having pain since my surgery. I was not told anything about this surgery as far as what to expect. My face is...
Support Group: Brain Tumor
Last active: Feb 9, 2017
Choosing how to handle a regrowth of a meningioma gamma knife/surgery
Original larger meningioma removed surgically 2019 - smaller tumors have grown since (4) and they have been removed by gamma knife. Now a previous growth...
Support Group: Brain Tumor
Last active: Apr 11, 2023
Post meningioma surgery: Daily pain, puffy/discolored eyes, drainage
I have daily head pain and my surgery was in November. The blood pressure medicine I'm on causes my eyes to be puffy and discoloration...
Support Group: Brain Tumor
Last active: Feb 22, 2017
Any Optic Nerve Meningioma Patients Who've Had Surgery?
I would like to connect with anyone who has an optic nerve meningioma and underwent surgery to resect this type of benign tumor.
Support Group: Brain Tumor
Last active: May 13, 2024
Sister has severe head pain 3 years post Meningioma surgery
Has anyone experienced head pain this long? All doctors throw pain pills at her without any relief. She's suffering and has no life. Any suggestions?...
Support Group: Brain Tumor
Last active: Jan 16, 2017
I have a menigioma. Should I wait or go ahead with surgery?
My opthamologist ordered an MRI to check out my optic nerve as I have advanced glaucoma.After getting the results he promptly referred me to a...
Support Group: Brain Tumor
Last active: Nov 28, 2023