Support Groups

Blood Cancers & Disorders Support Group

Public Support Group
813 total results
Discussion
How does someone “feel” with untreated AML?
My brother suffered a TBI 38 years ago. He was living independently for decades, but every day was a struggle for him. Not only with...
Last active: Feb 24, 2024
Discussion
Anemia and exercise
I’m just sticking this here for anyone who may have significant anemia and struggle with keeping active. I’ve got MDS and have red cell transfusions...
Last active: Jan 14 5:26pm
Discussion
Insurance has denied coverage
I've been fighting MF and MDS for a long time. Had a number of different treatments over the years. Some helped more than others, but...
Last active: Jan 11, 2024
Discussion
Chimerism Test Results Post Stem Cell Transplant
Hello,My husband, Mark, 69 years old, was diagnosed with Myelodysplastic Syndromes blood cancer in May 2022 and had an allo SCT in November 2022 at...
Last active: Feb 10 12:56pm
Discussion
MPNs - I have so many questions.
Hello, my father(73yo) was dx with MPN -PV in Oct 2024, long story short, my dad has hx of cardiac disease (triple bypass in 2013,...
Last active: May 11 7:26pm
Discussion
Hypocellularity of 10-20% and moderate fibrosis in 25 year old?
Hi all, I recently had a bone marrow biopsy performed with the following results. The pathologist stated that I had a hypocellularity of 10-20% with...
Last active: Mar 15 8:28pm