902 total results
Discussion
Can Blood Counting Machines Be Wrong?
My wife's CBC blood counts have been low for 18 months (see chart). Is there any chance that the numbers are, in fact, false readings?...
Discussion
Blood work question: Abnormal lymphocyte and Large Platelets?
Hi, I have MDS and just got my latest blood test Tuesday. He was not as chatty as usual just said my platelets were the...
Discussion
Have your copper levels been checked?
Yes, MDS is defective bone marrow not producing enough healthy cells. There is a correlation between low WBC and low levels of copper. I have...
Discussion
question for oldtimers
Since joining after my MDS diagnosis, I have noticed some people join Mayo who do not have any type of blood disorder or cancer. They...
Discussion
What's the danger in longterm use of filgrastim (Neupogen)?
Can you tell me your experience and your doctor’s cautionary information about long term injections of Filgrastim? You may know this by other names such...
Discussion
How long can we be on azacitidine (Vidaza)?
,m 68 years old, being with MDS for the past 3 years, 2 and haft years on Vidaza, seems working fine , but for the...
Discussion
New Dr different diagnosis
Hello everyone. I had written a month ago or so that I was trying to find a new doctor that deals with blood issues/cancers. Yay...
Discussion
How does someone “feel” with untreated AML?
My brother suffered a TBI 38 years ago. He was living independently for decades, but every day was a struggle for him. Not only with...
Discussion
Anemia and exercise
I’m just sticking this here for anyone who may have significant anemia and struggle with keeping active. I’ve got MDS and have red cell transfusions...
Discussion
Insurance has denied coverage
I've been fighting MF and MDS for a long time. Had a number of different treatments over the years. Some helped more than others, but...