MDS and cognitive decline

Posted by bradmm @bradmm, Mar 5, 2019

Just curious, if there is less oxygen going to the brain as a result of lower levels of hemoglobin, will that cause cognitive decline?

Hello @bradmm, I am not a medical professional, but the listed symptoms of MDS include:
– Fatigue
– Shortness of breath
– Unusual paleness (pallor) which occurs due to a low red blood cell count (anemia)
– Easy or unusual bruising or bleeding which occurs due to a low blood platelet count (thrombocytopenia)
– Pinpoint-sized red spots just beneath your skin caused by bleeding (petechiae), and
– Frequent infections which occurs due to a low white blood cell count (leukopenia)

Low hemoglobin, otherwise called anemia can include the following symptoms:
– Fatigue
– Weakness
– Pale or yellowish skin
– Irregular heartbeats
– Shortness of breath
– Dizziness or lightheadedness
– Chest pain
– Cold hands and feet
– Headache

@bradmm, have you discussed this with your hematologist? Factors like treatment, aging, or another illness may cause some impairment, but that would be best discussed with your provider? If you are comfortable, are you currently experiencing some cognitive issues in conjunction with your MDS diagnosis?

REPLY

Thanks, Justin, I'm familiar with the listed symptoms because my wife has been dealing with it for years. Because my wife is the one with the disease, I don't really want to discuss cognitive issues with her oncologist in front of her. She is stressed enough as it is. I asked the question here to see if any other patients had experienced cognitive decline in order to avoid having that discussion in front of her.

REPLY
@bradmm

Thanks, Justin, I'm familiar with the listed symptoms because my wife has been dealing with it for years. Because my wife is the one with the disease, I don't really want to discuss cognitive issues with her oncologist in front of her. She is stressed enough as it is. I asked the question here to see if any other patients had experienced cognitive decline in order to avoid having that discussion in front of her.

Jump to this post

That is understandable @bradmm, and I hope my inquiry was not offensive. I would like to invite some of the members who have talked about MDS in the past, perhaps they could share their experiences in regards to your question. @jaylevel1, @cybears, @lithuanian, and @esperanzam have talked about being diagnosed with MDS and may be able to offer some experiences with their MDS and side-effects.

REPLY

No, not offensive at all, just wanted to clarify that this was about my wife. I would like to hear from actual people with experience with this.

REPLY
@bradmm

No, not offensive at all, just wanted to clarify that this was about my wife. I would like to hear from actual people with experience with this.

Jump to this post

Hi I am new to this site, but I was diagnosed with MDS, specifically RARS in 2013. I have become transfusion dependent for the past 11/2 years. I have been finding that my cognitive abilities have been slipping. I have problems with concentration, memory and at times some mild confusion. I haven't asked my doctor but I feel that it is due to my low oxygen levels when my hgb is low.

REPLY
@hklass

Hi I am new to this site, but I was diagnosed with MDS, specifically RARS in 2013. I have become transfusion dependent for the past 11/2 years. I have been finding that my cognitive abilities have been slipping. I have problems with concentration, memory and at times some mild confusion. I haven't asked my doctor but I feel that it is due to my low oxygen levels when my hgb is low.

Jump to this post

Thank you for your reply!

REPLY
Please login or register to post a reply.