Blood Cancers & Disorders Support Group

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Comment

Do you take it everyday or just when you feel the itch come on ?

https://connect.mayoclinic.org/comment/790875/

Discussion: MGUS with Polycythemia Vera (PV)

Support Group: Blood Cancers & Disorders

Posted: Dec 31, 2022

Comment

Went through this after having my daughter. Bone marrow ruled out cancers, went on high doses...

https://connect.mayoclinic.org/comment/749257/

Discussion: Immune Thrombocytopenia Purpura (ITP): What helps?

Support Group: Blood Cancers & Disorders

Posted: Sep 14, 2022

Comment

Hi Lori, I've been doing some research and have read in several places that these targeted...

https://connect.mayoclinic.org/comment/747457/

Discussion: Tasigna side effect? How do I stop an itchy scalp and rash?

Support Group: Blood Cancers & Disorders

Posted: Sep 9, 2022

Comment

Hi @talmadge81 This itchy scalp and rash must really be all encompassing, especially since you glossed...

https://connect.mayoclinic.org/comment/743159/

Discussion: Tasigna side effect? How do I stop an itchy scalp and rash?

Support Group: Blood Cancers & Disorders

Posted: Aug 29, 2022

Comment

I was diagnosed with CML almost 2 yrs ago. I did the hydroxyurea to start and...

https://connect.mayoclinic.org/comment/1425562/

Discussion: Is anyone taking Danziten (nilotinib) for CML?

Support Group: Blood Cancers & Disorders

Posted: Oct 28, 2025

Comment

@pmm My back Itches off and on, and I wake up at about 5 with a...

https://connect.mayoclinic.org/comment/1422772/

Discussion: MGUS Symptoms: What symptoms did you experience?

Support Group: Blood Cancers & Disorders

Posted: Oct 24, 2025

Comment

Yes, I have hereditary hemochromatosis. My ferritin is currently at 3886 and saturation is 97%. I...

https://connect.mayoclinic.org/comment/1355566/

Discussion: Hemachromatosis...

Support Group: Blood Cancers & Disorders

Posted: Jul 24, 2025

Comment

Leeann I'm doing fine with it. I was scared to. I got a reaction to it...

https://connect.mayoclinic.org/comment/1346858/

Discussion: Anyone have Rituximab infusion for lymphoma treatment? Did it help?

Support Group: Blood Cancers & Disorders

Posted: Jul 12, 2025

Comment

I am 76 and have been on Hydrea since May 2023. I found that I was...

https://connect.mayoclinic.org/comment/1259882/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Mar 16, 2025

Comment

Side effects are minimal and include fatigue, dry skin (my palms itch like crazy at times...

https://connect.mayoclinic.org/comment/1091143/

Discussion: Is anyone taking Ibrutinib (Imbruvica)?

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2024