Support Groups

Blood Cancers & Disorders Support Group

Lock icon Public Support Group
1,203 total results
Discussion
I have JAK2 ET and MPN: Anyone else have these symptoms?
Hi all, I've suffered for many years with this MPN disorder, but it seems not many others have the same symptoms, so I'l posting this...
Last active: Jul 14 12:00pm
Discussion
F/w PV- JAK2-pre-mylelofibrosis SCARED to start Hydroxyurea. Help!
I am a 51 year old woman who was diagnosed with MPN with a JAK2 9 years ago at West Cancer in TN. They never...
Last active: Jul 20 3:12pm
Discussion
Jak2 positive, biopsy next: Does it mean I have blood cancer?
Hi, I've been told I'm jak2 positive. I'm due to have a bone marrow biopsy in a day or two. My question is, if it...
Last active: Jul 17 12:07pm
Discussion
Jak 2 Positive with Elevated Platelets: What symptoms do you have?
42 yo female with platelet count at 478. Jak2 positive. Bone marrow biopsy recently done and confirmed. Started aspirin regimen today. I can't say I...
Last active: May 10, 2023
Discussion
Jak 2 mutations
Just told that I have a Jak 2 mutation. Anyone else been thru this ?
Last active: Dec 6, 2023
Discussion
Jak 2 and Waldenstrom's Macroglobulinemia
Hi to all on this group. I was diagnosed with jak 2 and mgus in 2016 and then Waldromstrom Macroglobulinemia(WM) in august 2019. The hematology/oncology...
Last active: Mar 10, 2021
Discussion
A link between Rheumatoid Arthritis and Essential Thrombocythemia?
Does anyone know if there is a link between Rheumatoid Arthritis and ET? Is one more prone to RA with a JAK2 mutation?
Last active: Feb 9, 2024
Discussion
After 3 months on hydroxyurea, I am going to ask to switch to Besremi
I was diagnosed with PV in March. When my hematocrit leveled off at around 44 after 10 weeks of phlebotomy, my hematologist put me on...
Last active: 1 day ago
Discussion
Polycythemia vera (PV): Does altitude matter?
I am PV JAK2 and live at an altitude of 6000 feet. Could this altitude harm my condition? What altitude should I avoid?
Last active: May 12, 2023
Discussion
Is it okay to take B12 with essential thrombocythemia (ET)?
I have ET and JAK2 mutation. Is it ok to take B12 for the tingling in my feet?
Last active: Jan 4 6:27pm