Blood Cancers & Disorders Support Group

I was diagnosed 18 months ago and am a very healthy athletic 68-year-old woman. I have been taking HU 500 mg a day and one...

I have been on Hydroxyurea for 1 1/2. I’m on 500 once a day. My platelets are tracking at 405k. I am borderline anemia. But...

Good morning,I've been lurking here a few weeks but now would love some advice.To cut a long story short, about 18 months ago, I was...

Hello. Has anyone with JAK2/PV who’s on 1000mg HU and Low Dose Aspirin daily, had an epidural or back surgery? What was your experience and...

Hello, I am newly diagnosed (2 weeks) with Essential Thrombocythemia JAK2 and have been on 1000mg a day of Hydroxyurea for 2 weeks. I have...

I was wondering if anyone can share their experience with Ojjaara treatment. I started having anemia, high platelets, and high white count two years ago....

I was being treated for low iron - was sent to a Oncology Hematologist- had Iron Infusions - gradually the iron values increased. Only received...

Any one managing Thrombocythemia Jak2 and hemochromatosis (cys282Tyr)? I’m new to both. I started Hydrea a few weeks ago. Any insights to share? Thanks!

I was diagnosed with Polycythaemia Ruba Vera with a jak2 mutation almost 2 years ago via blood test of course. I saw a post here...

On routine annual labwork in December of 2022, platelets were elevated (over 600 X1000/UL). At referral appointment with a hematologist in January 2023, platelets were...