Blood Cancers & Disorders Support Group

Just told that I have a Jak 2 mutation. Anyone else been thru this ?

Hi to all on this group. I was diagnosed with jak 2 and mgus in 2016 and then Waldromstrom Macroglobulinemia(WM) in august 2019. The hematology/oncology...

Does anyone know if there is a link between Rheumatoid Arthritis and ET? Is one more prone to RA with a JAK2 mutation?

I am PV JAK2 and live at an altitude of 6000 feet. Could this altitude harm my condition? What altitude should I avoid?

I was diagnosed with PV in March. When my hematocrit leveled off at around 44 after 10 weeks of phlebotomy, my hematologist put me on...

I am ET/Jak2 — 72 years oldDiagnosed July 2024HU 500mg dailyAre the following symptoms from the HU or ET itself:Lightheaded (feel a bit unbalanced/dizzyBrain fogItchyI...

Any recommendations for ongoing mild headaches since taking Hydroxyurea (500 mg per day). Trying not to take more drugs Have ET (Jak2) diagnosed August 2022...

Diagnosed with PV with JAK2 mutation In November. Did not do well on Hydroxyurea. I just started BESREMi at 100mg every 2 weeks. I have...

I have had ET JAK2 pos x 2 yr plts around 500 taking 2 baby asa daily. My Plts jumped to 702 and I was...

Had a bone marrow biopsy done in 2017 and was diagnosed with MGUS. Additional BMBs in 2018 & 2019 showed a slow progression of my...