Blood Cancers & Disorders Support Group

I currently have essential thrombocythemia with the JAK2 gene mutation. I currently take 500 mg of hydra seven times a week. I’m supposed to take...

I was diagnosed with Polycythaemia Ruba Vera with a jak2 mutation almost 2 years ago via blood test of course. I saw a post here...

On routine annual labwork in December of 2022, platelets were elevated (over 600 X1000/UL). At referral appointment with a hematologist in January 2023, platelets were...

Hi my wife's routine blood test came back with high platelet count a few times in the past few years, every time the doctor would...

Just was diagnosed and had a bone marrow biopsy yesterday. Going on Pegasys...anyone traveled this road before me? I'm 67 and new to all this,...

I was diagnosed with JAK 2 about two year ago - platelet count was around 750,000. I have been taking hydroxyrurea (500mg) daily and have...

Hi, I am new here and need some help. My platelet counts have been running high around 680. I just had a bone marrow biopsy,...

Hi, I've been told I'm jak2 positive. I'm due to have a bone marrow biopsy in a day or two. My question is, if it...

Hi all, I've suffered for many years with this MPN disorder, but it seems not many others have the same symptoms, so I'l posting this...

I am a 51 year old woman who was diagnosed with MPN with a JAK2 9 years ago at West Cancer in TN. They never...