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Blood Cancers & Disorders Support Group

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1,118 total results
Discussion
Need help newly diagnosed with a high platelet count and the JAK2 gene
Hi, I am new here and need some help. My platelet counts have been running high around 680. I just had a bone marrow biopsy,...
Last active: Sep 29, 2024
Discussion
Has anyone had a total knee replacement that also has JAK2?
I was diagnosed with JAK 2 about two year ago - platelet count was around 750,000. I have been taking hydroxyrurea (500mg) daily and have...
Last active: Jan 1 2:08pm
Discussion
Jak2 positive, biopsy next: Does it mean I have blood cancer?
Hi, I've been told I'm jak2 positive. I'm due to have a bone marrow biopsy in a day or two. My question is, if it...
Last active: Feb 16 9:41am
Discussion
Jak 2 mutations
Just told that I have a Jak 2 mutation. Anyone else been thru this ?
Last active: Dec 6, 2023
Discussion
Jak 2 Positive with Elevated Platelets: What symptoms do you have?
42 yo female with platelet count at 478. Jak2 positive. Bone marrow biopsy recently done and confirmed. Started aspirin regimen today. I can't say I...
Last active: May 10, 2023
Discussion
Jak 2 and Waldenstrom's Macroglobulinemia
Hi to all on this group. I was diagnosed with jak 2 and mgus in 2016 and then Waldromstrom Macroglobulinemia(WM) in august 2019. The hematology/oncology...
Last active: Mar 10, 2021
Discussion
A link between Rheumatoid Arthritis and Essential Thrombocythemia?
Does anyone know if there is a link between Rheumatoid Arthritis and ET? Is one more prone to RA with a JAK2 mutation?
Last active: Feb 9, 2024
Discussion
Polycythemia vera (PV): Does altitude matter?
I am PV JAK2 and live at an altitude of 6000 feet. Could this altitude harm my condition? What altitude should I avoid?
Last active: May 12, 2023
Discussion
After 3 months on hydroxyurea, I am going to ask to switch to Besremi
I was diagnosed with PV in March. When my hematocrit leveled off at around 44 after 10 weeks of phlebotomy, my hematologist put me on...
Last active: Feb 24 6:33pm
Discussion
Polycythemia Vera: HFE and IFT140 Genes
While I know JAK2, TET2, CALR, etc. are the most common genetic mutations in PV, does anyone else have it with the HFE gene (with...
Last active: Jan 18 3:27pm