Blood Cancers & Disorders Support Group

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Comment

I was wondering the same thing- that it took Jackie to do her own research. For...

https://connect.mayoclinic.org/comment/1195078/

Discussion: My mom has Polycythemia Vera: Can PV be managed without phlebotomies?

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2024

Comment

@loribmt I have been diagnosed with MF in October 2025. Having read the dreadful list of...

https://connect.mayoclinic.org/comment/1494327/

Discussion: Are there support groups for Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jan 30 2:33pm

Comment

Are you by chance taking testosterone, either by injection or a topical preparation? Polycythemia (but not...

https://connect.mayoclinic.org/comment/784089/

Discussion: Polycythemia Vera - Help getting Diagnosis

Support Group: Blood Cancers & Disorders

Posted: Dec 12, 2022

Comment

I could use any links that you have also. It is hard finding I anything on...

https://connect.mayoclinic.org/comment/1395872/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Sep 18, 2025

Comment

That’s so interesting you weren’t getting a CBC draw in all that time. I had always...

https://connect.mayoclinic.org/comment/1323595/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2025

Comment

I am JAK2 positive with ET and my platelets are still in the millions. I started...

https://connect.mayoclinic.org/comment/846777/

Discussion: Jak 2 Positive with Elevated Platelets: What symptoms do you have?

Support Group: Blood Cancers & Disorders

Posted: Apr 21, 2023

Comment

Sorry, "driver mutation" just refers to the mutation you have that causes the ET. You are...

https://connect.mayoclinic.org/comment/781585/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2022

Comment

I didn’t get diagnosed with JAK2 and PV (2022)until a year after a hysterectomy (2021). (They...

https://connect.mayoclinic.org/comment/763289/

Discussion: Polycythemia: Are you asymptomatic?

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2022

Comment

Are you positive for JK2? I have PV with A positive JAK2 on hydrox for 2...

https://connect.mayoclinic.org/comment/1299114/

Discussion: Primary Myelofibrosis: Continue watch & wait? 2nd opinion?

Support Group: Blood Cancers & Disorders

Posted: May 7, 2025

Comment

I also had PCV dx and was already taking a blood anti coagulant(xarelto) and baby aspirin...

https://connect.mayoclinic.org/comment/1086296/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2024