Primary Myelofibrosis: Continue watch & wait? 2nd opinion?

How are your platelet's? Go to Mayo Rochester and see Doctor Teferri. I've had it for seven years. Don't wait.

My platelets are ok..But WBC went up to 27. I hope to connect with Mayo this week.

Hi @carolannt, if you would like to get a second opinion at Mayo Clinic, you can self-refer or get your current physician to submit a referral. Learn more here: http://mayocl.in/1mtmR63

Here are a few other discussions about
- Primary Myelofibrosis https://connect.mayoclinic.org/search/discussions/?search=Primary+Myelofibrosis

In addition to @paulhayne, I'm tagging @rspriggle @stevehurlburt @scottmatteo @ragius and @stimme to bring them into the discussion to share their watch and wait stories and treatment decision making.

Thank you for your help. Is it better to get my Dr to refer me to Mayo Clinic or do it myself?

Hi @carolannt. Regarding the referral to Mayo…you can do it on your own but I’ve heard it helps if your doctor makes a referral. Here’s the site for the Mayo Clinic where your doctor can make the referral. https://www.mayoclinichealthsystem.org/referrals#:~:text=Complete%20our%20referral%20form%20on%20your%20computer%2C%20then,appropriate%20department%20for%20review.%203.%20Refer%20by%20phone

Best of luck to you! Will you let me know what you find out?

Thanks. If I do it on my own with no luck, can I then have my Dr refer me?

Yes. The first step involves speaking with a scheduler. You can ask the scheduler if they think a physician referral would be better.

Thank you!