Polycythemia Vera - Help getting Diagnosis
I’ve been getting treated for strange heart anomalies for nearly a year now and been consistently getting labs will elevated RBC, hemoglobin, and hematocrit levels. I can no longer take warm showers as my skin feels like it’s being raked with glass. I’m having phlebotomies done every 3-5 weeks to dispose of an over production of “thick blood” and over the course of a year have lost nearly 115 pounds and have have developed gout. Everything I’m finding points to PV but when brought up to my care team it’s immediately brushed off or discounted and I’m simply being told to stay the treatment plan. I’m 17 months into the plan, 33 years old and just had my 4th heart attack, can’t keep weight on have “vertigo”, I’m putting in quotes because the two times it’s happened this year I lost my eyesight for 5-10 days and have to undergo physical therapy each time to regain mobility in my legs. I’m now on state health insurance and don’t have many options. Any help on what to do or where to go would mean so much. I’ve attached results of most recent panels of any physicians are present to interpret.