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Waldenstrom: When will treatment stop? Is this forever?
Waldenstroms about 2 yearsNow. On Ruxience and Octigam infusions and Brukinsa pills… also dexamethosone.. still anemic. Numbness in feetMuch better.But Igm coming down and igg...
Last active: Sep 16, 2025
Discussion
Waldenstroms: What to expect immunoglobulin infusions with rutuxan?
Been on rituxan infusions and rituxan for months now. Ugg and uga dangerously low and gum coming down but very slowly . Doc added immunoglobulin...
Last active: Mar 12, 2025
Discussion
Waldenstroms lumps in my jugular veins sore
Hello everyone, just wondering if anyone else with waldenstroms has experienced pain in the neck and throat area in the veins or muscle im not...
Last active: Feb 8, 2024
Discussion
With Waldenstroms for a couple of years. Numbers including hemoglobin
Dr just added prednisone to my meds even though I take dexamethosone . Is this normal protocol? I get Ruxience, and octigam infusions as well.?Been...
Last active: Sep 22, 2025
Discussion
Waldenstrom macroglobulinemia (WM): Deciding treatment options
I was diagnosed this week with WM. No symptoms except persistent anemia and periodic breathlessness. I had a bone marrow biopsy which confirmed IgM, free...
Last active: Jan 28 8:46am
Discussion
Waldenstrom macroglobulinemia: What can I expect with chemo?
I'm 40yr old male, just been recently diagnosed with Waldenstrom macroglobulinemia, I have no symptoms. I'm going to start chemo in a few weeks, what...
Last active: Jul 5, 2025
Discussion
Waldenstrom macroglobulinemia (WM) 3 years: Might I be in remission?
I thinkMy dr finally found the right formula. Brukinsa, Ruxience infusions, omigam and dexamethodone. Igms finally going down. Iga non existent but other immunoglobulins much...
Last active: Aug 21, 2025
Discussion
Waldenstroms: Can severe neck and shoulder pain be due to meds?
Can severe neck and shoulder pain onRight side be related to my Waldenstroms orMeds? Aldosterone denolitaring.New symptoms.
Last active: Feb 26, 2025