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Discussion
Waldenstroms lumps in my jugular veins sore
Hello everyone, just wondering if anyone else with waldenstroms has experienced pain in the neck and throat area in the veins or muscle im not...
Last active: Feb 8, 2024
Discussion
Waldenstroms: What to expect immunoglobulin infusions with rutuxan?
Been on rituxan infusions and rituxan for months now. Ugg and uga dangerously low and gum coming down but very slowly . Doc added immunoglobulin...
Last active: Mar 12 1:46pm
Discussion
Waldenstrom macroglobulinemia: What can I expect with chemo?
I'm 40yr old male, just been recently diagnosed with Waldenstrom macroglobulinemia, I have no symptoms. I'm going to start chemo in a few weeks, what...
Last active: Jul 5 11:10pm
Discussion
With Waldenstrom, what side effects did you have with ibrutinib?
My husband has waldenstrom. Since last 3 years he has been on ibrutinib. Recently he developed pleural effusion. Wondering if it is side effect of...
Last active: Oct 17, 2023
Discussion
Waldenstroms: Can severe neck and shoulder pain be due to meds?
Can severe neck and shoulder pain onRight side be related to my Waldenstroms orMeds? Aldosterone denolitaring.New symptoms.
Last active: Feb 26 10:03am
Discussion
Waldenstrom macroglobulinemia (WM) 3 years: Might I be in remission?
I thinkMy dr finally found the right formula. Brukinsa, Ruxience infusions, omigam and dexamethodone. Igms finally going down. Iga non existent but other immunoglobulins much...
Last active: Aug 21 4:01pm
Discussion
When will treatment stop?
Waldenstroms about 2 years Now. On Ruxience and Octigam infusions and Brukinsa pills… also dexamethosone.. still anemic. Numbness in feet Much better. But Igm coming...
Last active: Sep 16 10:12am
Discussion
Extreme constipaion
Brukinsa, dexamethosone and infusions of Ruxience, and s octigam twice a month. Straining causing bleeding. Only thing that helps is enemy but makes me sweating...
Last active: Jun 10 6:05pm
Discussion
Palliative care?
Just receives referral for palliative care In mail. Concerned Because it Was Never discussed with oncologist for My Waldenstroms. I see him on June 30th....
Last active: Jun 20 2:08pm