Waldenstroms lumps in my jugular veins sore

Posted by belcar45 @belcar45, Jan 20 3:50am

Hello everyone, just wondering if anyone else with waldenstroms has experienced pain in the neck and throat area in the veins or muscle im not 💯 % but I have only recently just noticed lumps or growths in there last night and so sore I have this sort of tick where I have to do these involuntary movements and I have to adjust myself to feel better hopefully you guys may know something 😊

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Colleen Young, Connect Director | @colleenyoung | Jan 21 9:31pm

@belcar45, this sounds like something you should consult your doctor or oncologist about.

belcar45 | @belcar45 | Feb 7 10:23am

In reply to @colleenyoung "@belcar45, this sounds like something you should consult your doctor or oncologist about." + (show)

Thankyou

ejrquast | @ejrquast | Feb 8 9:39am

I was sorry to hear about your new symptoms. I was diagnosed with WM in 2014 and also suggest consulting your doctor. We look forward to your updates.

belcar45 | @belcar45 | Feb 8 10:20am

In reply to @ejrquast "I was sorry to hear about your new symptoms. I was diagnosed with WM in 2014..." + (show)

Thankyou how old were you upon diagnosis if you don’t mind me asking?😊 I was 35 yrs old my haemoglobin was 80 and my platelets were 110 and on Sunday just days ago I needed to call ambulance as the pain in my stomach and right side was unbearable upon them arriving and me refusing morphine and Fentanyl I was about to have some panadein forte but my body shut down I couldn’t move my hands fingers nothing I thought I was going to be a vegetable forever honestly I said as I could see I’d dropped the tablets and water to my mum I love you mum and then because I was crying I had the worst pain it just went through me and then I was given Fentanyl not at Allgood I don’t feel good I look pregnant my stomach absolutely hurts 24/7 I can’t get comfortable at all in any position my lower back is so painful and my hips hurt I arrived at the hospital and was given engine 5 hours later discharged and sent home with a referral to a pain management clinic