Blood Cancers & Disorders Support Group

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Comment

Hello @barbwsm! I imagine you are not feeling great. You do not mention whether your physician...

https://connect.mayoclinic.org/comment/1099071/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2024

Comment

Thank you, jrwilli1 (@jrwilli1). Fortunately, my partner has been seeing a physical therapist for quite some...

https://connect.mayoclinic.org/comment/1386913/

Discussion: High Risk Myelodysplastic Syndrome: What to Expect?

Support Group: Blood Cancers & Disorders

Posted: Sep 4, 2025

Comment

Hello @joeliliacv Welcome to Connect. MDS can impact the production of certain blood products such as...

https://connect.mayoclinic.org/comment/1255600/

Discussion: Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Mar 11, 2025

Comment

@shoch1957 My husband was on Reblozyl when first diagnosed MDS . It only worked for him...

https://connect.mayoclinic.org/comment/1463904/

Discussion: Recently diagnosed with MDS with anemia and would like to connect

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2025

Comment

Hi @justmeb5 Recently, in another discussion you’d asked about Vidaza (Azacitidine) and if there were other...

https://connect.mayoclinic.org/comment/1301625/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: May 11, 2025

Comment

I’m 71 & was diagnosed with MDS in March. I wasn’t given the option of wait...

https://connect.mayoclinic.org/comment/1369358/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Aug 12, 2025

Comment

I too have been diagnosed with MDS. I was actually donating platelets before 2021. In June...

https://connect.mayoclinic.org/comment/1052788/

Discussion: MDS: Can someone explain how or why platelets go up or down quickly?

Support Group: Blood Cancers & Disorders

Posted: Apr 18, 2024

Comment

Like you my doc has told me stem cell was not an option for my MDs...

https://connect.mayoclinic.org/comment/823332/

Discussion: MDS treatment options other than bone marrow transplant

Support Group: Blood Cancers & Disorders

Posted: Mar 9, 2023

Comment

I have MDS and am experiencing cognitive decline. Still working a very stressful job and wish...

https://connect.mayoclinic.org/comment/870090/

Discussion: MDS and cognitive decline

Support Group: Blood Cancers & Disorders

Posted: May 31, 2023

Comment

What is the name of your doctor at university of Miami? We are originally from Miami...

https://connect.mayoclinic.org/comment/1341301/

Discussion: Has anyone heard of VEXAS syndrome?

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2025