Blood Cancers & Disorders Support Group

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Comment

Went today (Monday) for my bi-monthly visit to my hematologist along with routine bloodwork. My platelets...

https://connect.mayoclinic.org/comment/1528442/

Discussion: MDS diagnosis with DDX41 Germline and Somatic

Support Group: Blood Cancers & Disorders

Posted: Mar 16 3:37pm

Comment

jschellhaas. I had MDS. Mu diagnosis last October 2023. The first thing my hematologist did was...

https://connect.mayoclinic.org/comment/1198034/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2024

Comment

I do not know what a CT guided Bone Marrow Biopsy is. I have had 5...

https://connect.mayoclinic.org/comment/1281088/

Discussion: CT guided Bone Marrow Biopsy: Your experiences?

Support Group: Blood Cancers & Disorders

Posted: Apr 13, 2025

Comment

Hello @loribmt, he is currently seeing an oncologist for his MDS diagnosis not a hemotologist, I...

https://connect.mayoclinic.org/comment/888221/

Discussion: Myelodysplasia Complications

Support Group: Blood Cancers & Disorders

Posted: Jul 1, 2023

Comment

Two years. The factors in my MDS are probably very different than yours, so do not...

https://connect.mayoclinic.org/comment/1365591/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 7, 2025

Comment

usmcmom- Every other week for injections? You are on watch and wait with the MDS? Is...

https://connect.mayoclinic.org/comment/1244141/

Discussion: Low platelet count of around 120,000: What should be looked at?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2025

Comment

I agree with fortunaeoldguy, as I was reminded that my bone marrow is the key to...

https://connect.mayoclinic.org/comment/1085790/

Discussion: Why is a new bone marrow biopsy necessary?

Support Group: Blood Cancers & Disorders

Posted: Jun 12, 2024

Comment

my wife has been diagnosed with mds and has two rounds of Vidazia. What is the...

https://connect.mayoclinic.org/comment/924396/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Sep 4, 2023

Comment

So I have MDs now on chemo drugs to prepare me for SCT hopefully it will...

https://connect.mayoclinic.org/comment/879865/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2023

Comment

Have minor mds but getting tranfusions every 2weeks now have high fertin which dr wants me...

https://connect.mayoclinic.org/comment/597339/

Discussion: High ferritin levels and post shoulder tendon operation pain/Exhausted

Support Group: Blood Cancers & Disorders

Posted: Apr 26, 2021