Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,071 total results

Comment

Went today (Monday) for my bi-monthly visit to my hematologist along with routine bloodwork. My platelets...

https://connect.mayoclinic.org/comment/1528442/

Discussion: MDS diagnosis with DDX41 Germline and Somatic

Support Group: Blood Cancers & Disorders

Posted: Mar 16 3:37pm

Comment

Hello @loribmt, he is currently seeing an oncologist for his MDS diagnosis not a hemotologist, I...

https://connect.mayoclinic.org/comment/888221/

Discussion: Myelodysplasia Complications

Support Group: Blood Cancers & Disorders

Posted: Jul 1, 2023

Comment

Two years. The factors in my MDS are probably very different than yours, so do not...

https://connect.mayoclinic.org/comment/1365591/

Discussion: Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 7, 2025

Comment

usmcmom- Every other week for injections? You are on watch and wait with the MDS? Is...

https://connect.mayoclinic.org/comment/1244141/

Discussion: Low platelet count of around 120,000: What should be looked at?

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2025

Comment

my wife has been diagnosed with mds and has two rounds of Vidazia. What is the...

https://connect.mayoclinic.org/comment/924396/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Sep 4, 2023

Comment

So I have MDs now on chemo drugs to prepare me for SCT hopefully it will...

https://connect.mayoclinic.org/comment/879865/

Discussion: Myelodysplastic syndromes (MDS): When do you need to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2023

Comment

Have minor mds but getting tranfusions every 2weeks now have high fertin which dr wants me...

https://connect.mayoclinic.org/comment/597339/

Discussion: High ferritin levels and post shoulder tendon operation pain/Exhausted

Support Group: Blood Cancers & Disorders

Posted: Apr 26, 2021

Comment

I agree with fortunaeoldguy, as I was reminded that my bone marrow is the key to...

https://connect.mayoclinic.org/comment/1085790/

Discussion: Why is a new bone marrow biopsy necessary?

Support Group: Blood Cancers & Disorders

Posted: Jun 12, 2024

Comment

Lori, did you see the report on Robin Roberts GMA on MDS. I didn’t realize she...

https://connect.mayoclinic.org/comment/815302/

Discussion: Any suggestions to alleviate Bone Pain from Multiple Myeloma?

Support Group: Blood Cancers & Disorders

Posted: Feb 22, 2023

Comment

Lori, Thanks for responding. I was diagnosed with Parkinson's in 2011. My platelets have dropped from...

https://connect.mayoclinic.org/comment/1248303/

Discussion: Anyone have both Myelodysplastic Syndrome (MDS) & Parkinson's?

Support Group: Parkinson's Disease

Posted: Mar 1, 2025