High ferritin levels and post shoulder tendon operation pain/Exhausted

Posted by cayleykerr123 @cayleykerr123, Jan 18 5:31am

I have high ferritin levels (over 800) but its not haemochromotosis.

I recently had a bad fall (torn shoulder tendon) and had to get my shoulder operated on. I was prescribed strong pain killers (palexia). its called tapentadol. Ive stopped taking them as I worry theyre making me worse- but the pain persists.

I am always so exhausted. I lie in bed all day. My joints hurt everywhere. My kids say ive become moody and irritable.

im not sure what to do- my GP is struggling to assist. People tell me to go to emergency room but im not sure.

Thanks

Hi Cayleykerr123,
I’m so sorry you’re having to go all of this, especially with children at home. Makes it difficult to get the rest you need.
High ferritin symptoms are similar to what you’re experiencing. But there are other things to consider as to why it’s elevated. What tests has your GP done to evaluate your situation? A number of factors can increase the ferritin level in your blood. Inflammation being one of them. Did this come on quickly after your surgery? Has an infection been ruled out? A suggestion would be to return to your GP and have a CBC to check for infection, liver functions, along with blood tests for rheumatoid arthritis and hyperthyroidism. Some answers may be forthcoming with those results.
You mentioned your GP is struggling to assist. Might be time for a second opinion with a referral to a specialist. Hematologist or rheumatologist? Not sure a trip the ER will get you the answers you need. While it feels awful for you, it’s not an emergency. This will take a little sleuthing…

Receiving blood transfusions can also be a culprit which is why my levels were/are elevated.
In the meantime until you have more answers, there are beneficial diets you can follow to help your body to not absorb as much iron on a daily basis. With the help of my hospital nutritionist, I learned to avoid red meats, tuna and other foods which contain high concentrations of iron. Drinking milk and green tea are excellent with slowing the absorption. Also nuts, whole grains and legumes are good. Green leafy greens but not spinach. I’m sure you can do a quick internet search for a complete diet. Again, these are merely suggestions.

Best of luck to you!

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